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MAY 2022

Patients giving voice to ALS research

Back in 2014, millions of people poured icy water over their heads to spread ALS awareness and support research for the devastating neurodegenerative disease.

Now tech developers want to hear your voices. 

Brian Andre has been living with ALS for six years.

“On average they only give you 2 to 5 years of life after diagnosis and some progress very quickly,” he said. “I’m really in a very small percentage of patients who see little or no progression. … My weakness is in my left side, left leg and arm. So it throws my gait off.”

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INDU NAVAR,
CEO - EVERYTHINGALS

MAY 2022

Live At 9: Researchers Collecting Audio and Video to Help ALS Detection

Remember the summer Americans took time to dump buckets of ice water on their heads to help fight the deadly disease ALS? This summer, there’s a more comfortable way to help researchers learn about ALS and other neurological disorders. Researchers want people to record their voices and upload them for study.

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Austen Eadie-Friedmann before his diagnosis of amyotrophic lateral sclerosis or ALS

MAY 2022

A Connecticut man is battling a fatal disease with ‘enormous courage’. Love and his work with an ALS group give him ‘purpose

Three years ago Austen Eadie-Friedmann, 38, had a dynamic career in the pharmaceutical/biotech field working for a Fortune 500 company and living in exciting places such as New York City, Boston and Europe, with his husband, William DeGregorio.

The couple, now together for 18 years and married for five, loved their life traveling the world, sharing a passion for art.

Then the devastating diagnosis arrived...

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INDU NAVAR,
CEO - EVERYTHINGALS

MAY 2022

How high tech shoes could help doctors better understand ALS

MOUNTAIN VIEW, Calif. - There is no cure for ALS, the progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord, but a Silicon Valley nonprofit is hoping to change that.

Starting Tuesday, EverythingALS, a Silicon Valley nonprofit and advocacy group, is starting its second research study involving ALS patients, using shoes with high-tech censors to track and study their movements. The study is open to 100 participants in the early stages of ALS, and is still accepting new participants....

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INDU NAVAR AND LISA DEEGAN,
FOUNDERS - EVERYTHINGALS

MAY 2022

Tech Tuesday: Using AI to fight ALS

LANSING, Mich. (WLNS) — One non-profit organization is using technological innovations and data science to support those grappling with amyotrophic lateral sclerosis, otherwise known as ALS.

EverythingALS was started by people like Lisa Deegan and Indu Navar.

They both know the impacts of ALS.

“I lost my husband to ALS and Lisa will tell her story; she lost her brother,” said Navar......

speed up diagnosing this disease.

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INDU NAVAR,
CEO - EVERYTHINGALS

MAY 2022

Bringing Awareness To ALS And Those Who Suffer From It

In this podcast, we are joined by Indu Navar. Indu Navar is the CEO of Everything ALS, a company that prioritizes bringing awareness to Amyotrophic Lateral Sclerosis (ALS) and those who suffer from it. ALS is a neurological condition that affects the victim's motor neurons. This causes muscle atrophy all across the body, which can eventually cause suffocation and even death.

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APR 2022

Be The Good with Kate Cherichello

Apr 29, 2022,  

Be the Good with Kate podcast- Kate Cherichello scheduled a taped interview with Indu for Wednesday, March 9th at 3:30pm EST to discuss EverythingALS and the research study. Episode went live on April 29th. 

https://www.youtube.com/watch?v=8AXAJad9T2Y

https://anchor.fm/bethegoodwithkate/episodes/Ep--47-Indu-Navar--EverythingALS-e1he3r7

https://podcasts.apple.com/us/podcast/ep-47-indu-navar-everythingals/id1579326070?i=1000559086580

https://www.katecherichello.com/bethegood.html

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APR 2022

Women In Wellness: Indu Navar and Lisa Deegan of EverythingALS On The Five Lifestyle Tweaks That Will Help Support People’s Journey Towards Better Wellbeing

Apr 20, 2022, Candice Georgiadis, -- Indu Navar and Lisa Deegan both lost loved ones to ALS. After watching their husband and younger brother, respectively, suffer from the disease with no answers they launched a non-profit, EverythingALS, to develop a solution. EverythingALS is conducting research using AI technology to spot and track early signs of ALS.

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DEC 2021

Driven by loss, two tech vets seek to track ALS

Mar 4, 2022, Ron Leuty, -- Indu Navar is CEO and Lisa Deegan is the head of strategic partnerships at EverythingALS, a Los Altos nonprofit trying to find a way to better diagnose, track and monitor people with amyotrophic lateral sclerosis.

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FEB 28, 2022

MITSUBISHI TANABE PHARMA JOINS EVERYTHINGALS CONSORTIUM TO HELP ACCELERATE BIOMARKER DISCOVERY FOR NEUROLOGICAL DISEASES

(San Francisco, CA)-- Today, EverythingALS.org (EALS), a patient-centric, citizen-based California nonprofit accelerating the discovery of digital biomarkers for neurological diseases such as amyotrophic lateral sclerosis (ALS), announced that Mitsubishi Tanabe Pharma Holdings America, Inc. 

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FEB 12, 2022

San Francisco based nonprofit launches new ALS research

SAN FRANCISCO (KCBS SF) — A San Francisco-based nonprofit is recruiting average people to take part in ALS research.

KCBS Radio’s Keith Menconi explains. 

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DEC 2021

ALS, Lou Gehrig’s Disease, takes many lives, Everything ALS is doing

Deb Fabricatore lost her younger brother to ALS in 2014, and became involved in ALS advocacy. Indu Navar lost her husband in 2019 and immediately stepped up into action by building a nonprofit devoted to honoring her husband.

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NOV 2021

Los Altos upstart EverythingALS is changing the face of the disease

For Indu Navar and Lisa Deegan – co-founders of the Los Altos-based nonprofit EverythingALS – amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease, is personal.

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Bay Area Nonprofit Seeks 300 Volunteers in ALS Speech Study

SAN FRANCISCO (CBS SF) — A Bay Area nonprofit dedicated to advancing research on an incurable — and fatal — disease of the nervous system is looking for 300 more people by the end of this month to participate in the largest-ever research project on the illness.

NOV 21, 2021

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EverythingALS said it needs more than 300 volunteers for its study to combat amyotrophic lateral sclerosis, more commonly known as Lou Gehrig’s disease, an incurable, degenerative illness.

NOV 21, 2021

Bay Area non-profit looking for volunteers in Lou Gehrig diseases study

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OCT 2021

EverythingALS Launches
“Stories and Innovation in ALS” Podcast

October 21, 2021 (Silicon Valley, CA) – For an inside look at how ALS impacts patients and their caregivers as well as the innovations that researchers and clinicians are coming up with to find biomarkers, treatments, and cures for this life-threatening disease, start listening to the EverythingALS podcast, “Stories and Innovation in ALS.”

EverythingALS (EALS) was founded in 2020 to help discover biomarkers – which are nonexistent -- and document the progression of ALS by launching the world’s largest speech study with more than 600 participants. 

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APRIL 2021


Accelerating Rare Disease Research

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In this moving, TEDx talk, Indu Navar tells how she lost her husband, Peter Cohen, to ALS and what she is doing to bring together patients, families, researchers and people everywhere to change the way that rare diseases are looked at.

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Digital Health InfoCast:
Machine Learning for a Cause

Canada has been an early leader in the AI space and there is no shortage of activity flourishing across the country. Today, we welcome Fanny Sie from Roche Canada and Indu Navar of Everything ALS to talk about machine learning and the End ALS Kaggle Challenge.

JULY 30, 2021

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Indu Navar, CEO and Founder of EverythingALS, explores the roles of Artificial Intelligence, Machine Learning, and Brain Computer Interface in the search for a cure for ALS. She will also share innovative research studies on ALS detection, how Pharma can work with and support ALS patient advocates, and her key leadership lessons for digital health entrepreneurs and innovators.

JUNE 25, 2021

Impetus Digital PODCAST

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JULY 2021

New project to better identify and treat ALS uses AI and data sharing

Through the AI CoE, Roche has collaborated with EverythingALS, AnswerALS, the Ontario Brain Institutes and ALS Canada to launch an open data science competition called the End ALS Challenge.

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Mar 29, 2021

THE STORY OF MODALITY.AI: HEALTHTECH AWARD WINNER

Suendermann-Oeft states that one of the most significant achievements for them has been collaborating with the non-profit organization EverythingALS, as well as MIT, Harvard, and IBM to scale the number of Modality platform users to over 100 within three months for a study focusing on the early detection and improved prognostic accuracy of ALS...

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"Jody O'Donnell introduced me to the founders of every Everything ALS,  brother and sister, Murgesh Navar and Indu Navar, and Indu lost her husband to ALS a few years ago.  Really, we just kind of hit it off from the get-go. Tremendous pair,  both kind of serial entrepreneurs; they started multiple companies in the Bay Area and they just brought a passion and energy, a desire  to do things quickly and challenge the status quo ...

April 30, 2021

interview with Katie Pecora for Patients Rising

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The Roche Canada Artificial Intelligence Centre of Excellence (AI CoE) is excited to collaborate with Answer ALS and EverythingALS to launch an initiative called the End ALS Challenge, with the support of ALS Society of CanadaOntario Brain Institute (OBI) and NetraMark Corp. The goal is to surface insights through an open data competition..

Mar 29, 2021

EndALS Kaggle Challenge to TACKEL ALS

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EverythingALS Selected to Present at the American Academy of Neurology Virtual Annual Meeting

EverythingALS, a California nonprofit dedicated to bringing technological innovations and data science to support people with ALS, has been selected to ...

April 16, 2021

Mar 25, 2021

Roche Canada AI Centre and EverythingALS to tackle ALS

The Roche Canada Artificial Intelligence Centre of Excellence (AI CoE) is excited to collaborate with Answer ALS and EverythingALS to launch an initiative called the End ALS Challenge, with the support of ALS Society of Canada, Ontario Brain Institute (OBI) and NetraMark Corp...

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Roche Canada Artificial Intelligence Centre and EverythingALS opens digital competition to tackle ALS 

EverythingALS, a California nonprofit dedicated to bringing technological innovations and data science to support people with ALS, has been selected to ...

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Mar 18, 2021