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if you are admitted into the study
We are looking for
Individuals Diagnosed or Probable with Amyotrophic Lateral Sclerosis (ALS)
and Healthy Participants
between 18 and 100 years of age
Our IRB approved study is motivated by the need for early detection and improved prognostic accuracy of ALS using advanced computational technology and speech data (audio, video). By participating in this study, you will contribute to a growing large ALS dataset and further advance current knowledge relating to the decline in speech due to ALS while also improving the performance of this technology.
The approach will be to perform analysis of online audio/video recordings: The study activity involves the use of Modality.ai Inc.’s web-based software that collects speech audio and video data and then uses AI and machine learning algorithms to analyze facial and speech metrics. Data collection can be conducted anywhere you feel comfortable (e.g., your home). Each session will last approximately twenty minutes. Participants are welcome to do multiple sessions if interested.
Protocol Number: 2020-06-PI42 | Sponsor: Peter Cohen Foundation
Meet Amazing Brian Andre Diagnosed with ALS in 2016
Meet the warrior, David Warnock Diagnosed with ALS in 2019