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pALS Impact Stories

Jan 2023

Montgomery County man with ALS part of study that aims to find root cause of disease


"The problem with ALS, unlike many other diseases, is they can't find a biomarker. The biomarkers, what you can see, is affected by a treatment," he described. The former high school public speaking teacher from Montgomery County is one of the 10% with ALS to live more than 10 years.

Jan 2023

Getting Vocal: Valerie Geerer on Everything ALS research  


“A friend told me about it, and I was like, ‘Sure, I’ll do it if it will help.’” Once a week, Val connects with an EverythingALS avatar that walks her through several tasks, including saying different words, repeating different phrases, and counting as high as she can in a single breath.

Tommy Edward Culpepper,Jr., 
Bentonville man works to help diagnose ALS sooner.

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Jul 23, 2022

A Bentonville man is dedicating his life to advocating for people with ALS and trying to help diagnose the disease sooner. “I’m a movie connoisseur,” said Tommy Edward Culpepper, Jr. 

Gwen’s story of ALS - These 2 Surprising Traits May Predict ALS, New Research Says.

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Jul. 20, 2022

How ALS researchers are using an intriguing tool to learn keys of this disease that has at times taken years to diagnose. Plus, one woman's story of why she agreed to participate in this ALS research (sometimes called Lou Gherig’s disease). 

Groundbreaking research involving artificial intelligence could diagnose ALS patients sooner.

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Aug 31, 2022

Five thousand people in the U.S. are diagnosed with a neurological disease called ALS every year. Medical experts say it typically takes an average of two years to diagnose, but new research will likely make that timetable a lot shorter.

Paul Miller, living with ALS for a decade participates in a new ALS research driven by patient-focused non-profit.

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Jul 28, 2022

New research is underway to better understand and treat ALS, a difficult disease to diagnose with no known cure. ALS patient Paul Miller of Scranton is one of the participants.

The progressive neurodegenerative disease ALS affects as many as 30,000 Americans. 

Patients giving voice to ALS research -
Brian Andre has been living with ALS for six years. 

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May 31, 2022 

Back in 2014, millions of people poured icy water over their heads to spread ALS awareness and support research for the devastating neurodegenerative disease.

Now tech developers want to hear your voices. 

Austen Eadie -Friedmann, 
a Connecticut man is battling a fatal disease
with ‘enormous

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May 30, 2022 

Three years ago Austen Eadie-Friedmann, 38, had a dynamic career in the pharmaceutical/biotech field working for a Fortune 500 company and living in exciting places such as New York City, Boston and Europe, with his husband, William DeGregorio.

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