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The ALS Gene Carrier Study 

Study of Asymptomatic Carriers

We are looking for individuals who are Gene Carriers of ALS and currently Asymptomatic

This study is conducted in partnership with Massachusetts General Hospital and Harvard Medical School with a generous support from ALS Finding a Cure.
We are developing a study motivated by the need for monitoring and  early detection of motor and speech changes using advanced computational technology. By participating in this study, you will contribute to further improve current assessment of individuals with the Asymptomatic ALS gene using physiological signals and objective measurements.
Our goal is to sensitively detect early motor and speech changes in ALS using a multimodal monitoring approach. We will measure gait and balance, speech, and upper limb function using motor function sensors. This study is fully remote and can be performed in the comfort of your home.
We are currently in the trial design phase. If you would like to participate in this study in the near future, please fill out the interest form below.
I am interested to participate in

More Info click here

Are you enrolled in PREVENT ALS Study (DIALS) or ALS Families Study?
Do you use Assistive Devices ?
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