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The ALS Gene Carrier Study 

Asymptomatic person with a known ALS Gene

We are looking for people who carry an ALS gene but are asymptomatic and not diagnosed with ALS.

We are enrolling for a study motivated by the need for monitoring and  early detection of motor and speech changes using advanced computational technology.

By participating in this study, you will contribute to further improve current assessment of individuals with the Asymptomatic ALS gene using physiological signals and objective measurements. 

Our goal is to sensitively detect early motor and speech changes in ALS using a multimodal monitoring approach.
This study is conducted in partnership with Massachusetts General Hospital and Harvard Medical School with a generous support from ALS Finding a Cure. 

Invitees:

Asymptomatic gene 
carriers for ALS and 
FTD related mutations
No known family
history of ALS and/or
have not tested
positive for an ALS-
linked gene mutation 
18+ years old and U.S.
Resident
1
2
3
I am interested to participate in Required

More Info click here

Are you enrolled in PREVENT ALS Study (DIALS) or ALS Families Study?
Do you use Assistive Devices ?

Leveraging advanced Artificial Intelligence technologies, we aim to measure and analyze ALS motor functions.

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Access your secured

data, anytime!

Study Procedure:

  • Wear limb sensors that record motor function data

  • Perform digital memory and thinking tests

  • Record speech and facial movement data

  • Sessions are conducted in the comfort of your home

This study is conducted

in partnership with

Massachusetts General

Hospital and Harvard Medical School with a generous support from ALS Finding a Cure.

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