NurOwn, An Overview of the Stemcell Clinical Trial with Dr. Namita Goyal, MD
Our Guest Speaker, Dr. Namita Goyal, MD., is one of the Principal Investigators in the Stemcell NurOwn Phase 3 trial. Before the trial is unblinded and the top line results are released later this fall, Dr. Goyal will help us understand NurOwn's clinical development & the role of neuroinflammation in ALS. o specializes in neuromuscular diseases at UC Irvine Health, with board certifications in neurology, electrodiagnostic medicine and neuromuscular medicine. Her clinical interests include amyotrophic lateral sclerosis (ALS), muscular dystrophies, muscle disease, myasthenia gravis, and demyelinating neuropathies. She performs a number of diagnostic procedures including adult and pediatric electromyogram (EMG), single-fiber EMG and muscle biopsies. Dr. Goyal completed a residency in neurology at University of Chicago Medical Center, followed by a fellowship in electromyography, clinical neurophysiology and neuromuscular disease at Harvard University’s Massachusetts General Hospital, where she subsequently served as a faculty member. At UC Irvine, Dr. Goyal continues her work in neuromuscular medicine. In addition to evaluating and treating patients, she is a mentor to fellows and residents, serving as fellowship director for the Department of Neurology. She also is an investigator in several clinical trials involving neuromuscular diseases. Find additional information on the clinical trials lead by Dr. Namita Goyal: https://profiles.icts.uci.edu/namita.goyal
A Comprehensive Functional Medicine Approach to ALS with Dr. Shelena Lalji
Our Guest Speaker, Dr. Shelena Lalji, MD., F.A.C.O.G. is founder of the Lalji ALS Foundation and dedicated to providing functional medicine approach to people with ALS. Dr. Shelena Lalji is a board-certified OB/GYN and a functional medicine expert who has been treating patients in the Greater Houston area for more than 20 years. She has spent the last 12 plus years of her professional career treating patients holistically getting to the root cause of their symptoms and diagnoses (www.DrShel.com). As an advocate for her patients, she has spent her time with patient care, educating other practitioners in the functional approach, speaking internationally, appearing on a variety of local and national media and volunteering with many charitable institutions. With the onset of her husband Dr. Ayeez Lalji’s ALS diagnosis in November 2017, she and her family founded the Lalji ALS Foundation (www.ALS Heroes.com). She assembled doctors, experts, research scientists and supporters from all over the world and worked around the clock to learn more about this debilitating disease. Dr. Shel and her family have collaborated with worldwide organizations and researchers to develop protocols to help ALS patients. She even hosted the first ever ALS Mastermind Summit in North America in 2019 where she convened 37 experts in the field of ALS and neurodegenerative diseases with over 400 years of cumulative experience. Through all this extensive research and collaboration, Dr. Shel and her team has compiled what she now calls her Brain Healing Bootcamp for many chronic conditions such as cancer, autoimmune diseases, Lyme disease and neurodegenerative conditions, such as ALS, MS, Parkinson’s, Alzheimers, dementia and even autism. Dr. Shel is committed to finding a cure for ALS and being an advocate for caregivers. She enjoys her many roles as physician, ALS advocate, women’s advocate, entrepreneur, loving wife and devoted mother to her two children, Zoe and Zade.
Suppressing Neuroinflammation: Cell-Based Therapy in ALS from Dr. Stanley Appel.
Our Guest Speaker, Dr. Stanley H. Appel, MD, is dedicated to the treatment of patients with ALS and is one of the nation's foremost experts on the disease from Houston Methodist Neurological Institute. Stanley H. Appel, MD is Co-director of Houston Methodist Neurological Institute, chair of the Stanley H. Appel Department of Neurology and the Peggy and Gary Edwards Distinguished Chair in ALS at Houston Methodist Hospital. He also is Professor of Neurology at Weill Cornell Medical College. An internationally renowned researcher and neurologist, Dr. Appel is dedicated to the treatment of patients with ALS and is one of the nation's foremost experts on the disease. He has spent more than 40 years devoted to understanding the human brain. Dr. Appel is creator and director of what is now the Houston Methodist Neurological Institute's MDA/ALSA ALS Research and Clinical Center in Houston. Established in 1982, the center was the first multidisciplinary clinic dedicated to ALS patient care and research in the United States. Dr. Appel's laboratory focuses on developing new insights into ALS, Parkinson's disease, and Alzheimer's disease, and was the first to document regulatory T-lymphocytes modulate disease progression in ALS patients. His focus is on enhancing the protective immunity of T-reg cells and anti-inflammatory microglia in neurodegeneration. Dr. Appel has written 15 books and more than 400 articles. His achievements include the Gold Medal for Excellence in Biomedical Research from Columbia College of Physicians and Surgeons, Sheila Essey Award for ALS Research, Texas Neurological Society Lifetime Achievement Award, Forbes Norris Award from the International Alliance of ALS/MND Associations and John P. McGovern Compleat Physician Award from the Houston Academy of Medicine
CaringALS Launch on Sept 9th 2020
CaringALS is a provider marketplace making it easier for people with ALS and family to find the best ALS care and ability to receive financial assistance. We would love to build our community of top notch providers, and also help those who are struggling. If you need financial assistance, please fill out Patient Form. https://rb.gy/ituytk If you have a provider that you recommend or If you are a provider and interested in joining, please fill out Provider Form https://rb.gy/ogyx0z Email us: email@example.com We will be adding more providers that come highly recommended from our community in the near future. We've been inspired to do things better and we are passionate about it. If you have any feedback or would like to be more involved please do not hesitate to reach out. Please reach out to us at firstname.lastname@example.org, if you have any difficulty or questions.
Stem Cells and Regenerative Medicine by Dr. Clive Svendsen, Ph.D. from Cedars Sinai.
Subscribe to this youtube channel to be upto-date. CaringALS.com - email@example.com https://www.youtube.com/watch?v=WUI6CStzLuY&t Our topic for discussion will be Stem Cells and Regenerative Medicine for ALS. Dr. Clive Svendsen, Ph.D. will be discussing stem cell research and the hope it brings for ALS patients. Our Guest Speaker Clive Svendsen, Ph.D., did his pre-doctoral training at Harvard University. He received his Ph.D. from the University of Cambridge in England where he then established a stem cell research group before moving to the University of Wisconsin in 2000 to become Professor of Neurology and Anatomy, Director of an NIH funded Stem Cell Training Program and Co-Director of the University of Wisconsin Stem Cell and Regenerative Medicine Institute (RMI). In 2010, he moved to Los Angeles to establish and direct the Cedars-Sinai Regenerative Medicine Institute, which currently has 20 faculty members and approximately 160 staff. The RMI recently opened a cGMP biomanufacturing facility that will both model and treat human diseases with a focus on iPSC technology. One focus of his current research is to derive reprogrammed induced pluripotent stem cells (iPSC’s) from a patient's adult cells and use them as powerful models of human disease. Dr. Svendsen led the first groups to successfully model both Spinal Muscular Atrophy and more recently Huntington’s Disease, Parkinson’s disease using this technology. He is also pioneering organ on a chip technology to advance these models and others such as the blood-brain barrier to better mimic human disease and have enhanced models of drug/tissue interactions. The other side of his research involves cutting edge clinical trials. He was involved with one of the first growth factor treatments for Parkinson’s Disease and is currently working closely with neurosurgeons, neurologists and other scientists to develop novel ways of using stem cells modified to release powerful growth factors to treat patients with neurological diseases such as ALS, Huntington’s, Alzheimer’s and Parkinson’s.
Functional Living with ALS.
Speakers discussed Functional Life with ALS. Day-to-day management of ALS care including noninvasive ventilation equipment and how it impacts breathing speaking and swallowing, mobility, assistive devices, and airway/speech/swallowing management. People with ALS and Caregivers shared many tips. Speaker are: 1. Deanna Britton, PhD, CCC-SLP, BC-ANCDS. 2. Katey Burke and Amy Swartz, physical therapists at the Healey Center for ALS at MGH. 1. Deanna Britton is an Assistant Professor in the Department of Speech & Hearing Sciences at Portland State University (PSU), and at the Northwest Center for Voice & Swallowing in the Department of Otolaryngology (NWCVS) – Head & Neck Surgery at Oregon Health & Sciences University (OHSU) in Portland, Oregon. She is Board Certified in Neurogenic Communication Disorders in Adults by the Academy of Neurological Communication Disorders and Sciences (ANCDS). She directs the She directs the Speech, Swallowing and Respiration (SSR) Lab, with locations at PSU and OHSU. Current research includes a focus on vocal fold kinematics and airflow during cough, breathing-swallowing coordination and the impact of noninvasive ventilation on speech and swallowing in individuals with restrictive respiratory conditions related to neuromuscular disease, including motor neuron disease. 2. Katey Burke and Amy Swartz are both physical therapists at the Healey Center for ALS at MGH in Boston. In their positions at MGH, both Katey and Amy assist with clinical management of people with ALS, including exercise and equipment recommendations. They are also deeply involved in the clinical research, helping with protocol development and outcomes for clinical trials. Katey Burke is in her fourth year with the team at MGH and came from Brigham and Women's hospital also in Boston, where she worked with patients with a variety of neurological and medical diagnoses in the acute care setting. She is an APTA Board Certified Clinical Specialist in Neurological Physical Therapy, and a lab instructor for the DPT program at MGH IHP. Amy Swartz has been at the ALS clinic MGH for over 16 years and prior to joining the team there, she worked at the Carolinas Neuromuscular ALS-MDA Clinic in North Carolina. She has served as a Faculty Advisor, Clinical Instructor, and Guest Lecturer for many of the Boston area DPT programs, including Boston University and MGH IHP.