ALS Radcliff Study:

Multi-disciplinary focus

We are looking for Individuals with Possible, Probable or Diagnosed ALS or those with early symptoms 

Our IRB approved study is motivated by the need for early detection and improved prognostic accuracy of ALS using advanced computational technology. By participating in this study, you will contribute to a growing large ALS dataset and further improve current assessment & treatment of individuals diagnosed with ALS using physiological signals and objective measurements. 
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I am interested to participate in
Do you use Assistive Devices ?
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What is the purpose of the study?
Advancing research is essential to develop primary and surrogate digital biomarkers to be used in clinical trial in order to understand this disease. The ultimate goal is early intervention. The collected data will enable development of novel machine learning/AI based tools to improve current assessment & treatment of individuals diagnosed with ALS using physiological signals and objective measurements.
 
 

This study is completely remote - all assessments will be completed in your home. The necessary equipment for the study will be sent to your house, which includes:​
  • spirometers for breathing tests

  • feet sensors for walking analysis
    and an android smartphone

     

EverythingALS mobile App will make it easy for you to navigate the study.
The format consists of weekly ALS-FRS-R & proctors sessions with a research co-ordinator

 

 

Your total participation will be 9-12 months
 

 

Any gender, age 18-80 years

  • Fully able to communicate, read, and write intelligibly in English 

  • Independently ambulate without gait assistive devices (Ankle-foot orthotics are allowed, as long as sole insert can be accommodated within the shoe) 

  • Able to ascend and descend stairs independently (use of hand railing is permitted/encouraged) safely by self-report.

  • Forced Vital Capacity ≥ 80% at screening

  • Individuals who have been diagnosed with ALS

 

The full list of requirements for the study can be discussed with the study coordinator.

*Will eventually put FAQ, training videos etc on this page*

What is the eligibility criteria?
What procedures will I participate in if I enroll in the study?
How long will I be in the Study?

Protocol Number:  2022-09-RAD-PI42 | Sponsor: Peter Cohen Foundation

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