ALS is a neurodegenerative disease with no treatments
Every 90 minutes someone is diagnosed
EverythingALS map of our community members and visitors
As patient advocates, we host bi-monthly community meetings that are designed to provide patients and caregivers with the support and information that they will need throughout their ALS journey.
Meet McFinn Lovere, our spirtual guide @
Develop speech analysis - audio and facial metrics - for early detection, clinical endpoints and better voice recognition tools for ALS in collaboration with MIT, MGH, UT Austin and Google. Funding for the first ALS Platform trial at Mass General by Dr.Merit Cudkowitz. Supporting AnswerALS and Gladstone Institute with multi-omics analysis with machine learning and big data to uncover ALS causes, subtypes, pathways, and drug targets.
Join our private invite-only Facebook group. You can request to join and we will respond immediately.
Follow us on twitter. We will regularity tweet announcements and research findings
Follow us on Instagram where our advocates and students share inspiring stories.
Join our LinkedIn group. We will share active research ideas and dialogue.
Subscribe to our YouTube channel. We will post our weekly community meetings content on YouTube channel
Welcome to our community