EverythingALS

Embracing the positive still recognizing the realities of ALS. 

ALS is a neurodegenerative disease with no treatments.

Every 90 minutes someone is diagnosed.

Care for ALS Patients 

As patient advocates, we host weekly community meetings that are designed to provide patients and caregivers with the support and information that they will need throughout their ALS journey.  

Finding a cure for ALS 

Technology will be the key enabler for the innovation to end ALS. We support efforts to find a cure for ALS by creating a platform for direct engagement with patients, researchers and cutting edge Cloud and AI technologies. 

Sponsored

Projects

Develop speech analysis for early detection and better voice recognition tools for ALS with MIT, UT Austin and Google. Funding for the first ALS Platform trial at Mass General by Dr.Merit Cudkowitz. Supporting AnswerALS and Gladstone Institute with multi-omics analysis with machine learning and big data to uncover ALS causes, subtypes, pathways, and drug targets.

Our team is very passionate about creating a safe and positive environment to share, learn, and discuss everything from Care to Cure for all ALS patients. This project is inspired by patient advocates as a tribute to loved ones.

About Us

EverythingALS is a patient-focused non-profit, part of Peter Cohen Foundation (PCF)  a 501(3)c organization. Our mission is to support efforts to care for ALS patients and work to find a cure by creating a platform for direct engagement with patients, caregivers, advocates, and researchers.

We believe the technology will be a key enabler for the innovation to end ALS, we are here to bridge the gap between patients, research and technology.  Our diverse team is composed of patient advocates, students, nurses, physicians, entrepreneurs, artificial intelligence engineers, biologists, ALS patients, and spiritual guidance from one person who has reversed ALS.  We are here to help provide information to all of those affected by ALS. 

EverythingALS Team is inspired by the mission to bring researchers, patients and patient's biomarkers, and AI/deep learning technology together to help find early diagnosis and treatments for neurological diseases working with MIT, Mass General, UT Austin, Answer ALS, Johns Hopkins, Google and Gladstone Institute. We are a diverse team comprised of Patient Advocates, Medical Professionals, Entrepreneurs, Computational Biologists and Medical Students.

Team

Videos of Past Events

ALS Reversals - The 48 documented cases with Dr Richard Bedlack. EverythingALS Patient Community Meet 

(July 29th)

Personalized Medicine in ALS with Dr. Jeff Rothstein MD PhD of Johns Hopkins. Patient Community Meet 

(July 15th)

Promising Laws for ALS with Congressmen Jeff Fortenberry (R-NE) and Mike Quigley (D-IL). Patient Community Meet 

(July 1st)

Journey to Answer ALS with Edward (Ed) Rapp. Patient Community Meet 

(June 17th)

Innovation & ALS Treatments with Dr. Merit Cudkowicz. Patient Community Meet 

(June 3rd)

....more videos on EverythingALS YouTube Channel

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Join us on Social Media

There are many ways to be involved and engaged on day-to-day conversations

Join our private invite-only Facebook group. You can request to join and we will respond immediately. 

Follow us on twitter. We will regularity tweet announcements and research findings

Follow us on Instagram where our advocates and students share inspiring stories. 

Join our LinkedIn group. We will share active research ideas and dialogue.

Subscribe to our YouTube channel. We will post our weekly community meetings content on YouTube channel

Subscribe

Welcome to our community