Past Events

  • BrainGate: Toward the restoration of communication and mobility for people with ALS
    Hear from Dr. Leigh R. Hochberg, Neurologist at MGH, Principal Investigator and lead Clinical Investigator of the BrainGate pilot clinical trials
  • Neuralink's Wireless Brain Machine Interface for People with Motor Impairment
    Join us in hearing from Jayant P Menon MD, MEng is a Clinical Assistant Professor of Neurosurgery at Stanford and Biomedical Engineer at Neuralink. His work at Neuralink focuses on delivering a high band-width wireless brain machine interface for patients with motor disabilities.
  • Environmental Factors In the Causation of ALS
    Join Dr.Walter G. Bradley, for an insightful seminar on his research on Environmental Factors In the Causation of ALS.
  • Digital Biomarkers in ALS
    May 05, 4:00 PM
    Zoom Call
    Join Dr.James Berry, for an insightful seminar on use of Digital Biomarkers in ALS. Dr. Berry is working to identify biomarkers to improve clinical trial methodology. His goal is to speed up the process of identifying the next drug that will slow, reverse or even prevent ALS in the future.
  • Assistive Technology for Communication, A Spectrum of Options
    Join Speech and Language Specialists, Emily Kornman and Lisa Bardach, for a webinar on Assistive Technology for Communication.
  • NU-9 and the Importance of Upper Motor Neuron Health in ALS
    Our speaker Dr. Ozdinler, Associate Professor of Neurology at Northwestern University will discuss the NU-9 and the importance of Upper Motor Neuron Health in ALS.
  • Caregiver Support Group
    Mar 28, 4:00 PM
    Zoom Call
    Join Mental Health Specialist, Mary Holt-Paolone, and Caregiver, Marie Bishop, for a caregiver support seminar.
  • Breathing is Everything: Respiratory care for people with ALS
    Our speakers, Randy Fishman and John Hansen-Flaschen, MD from University of Pennsylvania. Dr. Hansen-Flaschen founded the Jay and Randy Fishman Program for Home Assisted Ventilation for People withwithin the Harron Lung Center at Penn.
  • Mesenchymal Stem Cell Therapies for ALS
    Our speaker, Dr. Nathan Staff from Mayo Clinic, will share the phase 2 study on mesenchymal stem cells derived from patient adipose (fat) tissue as therapy for ALS.
  • The Guam Disease and ALS
    Feb 24, 4:00 PM
    Zoom Call
    Our speaker, Paul Allan Cox, will share his journey that led to discovery of L-Serine as a potential drug for ALS.
  • Behind the Curtain of ALS Clinical Trials & Alexion CHAMPION ALS  Phase 3 Clinical Trial update.
    Our speakers from Alexion Pharmaceuticals will share this very important knowledge -- Behind the Curtain: clinical trials process and overview & update us on Alexion CHAMPION ALS phase 3 Clinical Trial.
  • Gene Based Therapies for ALS
    Jan 27, 4:00 PM PST
    Zoom Call
    Dr. Bob Brown from UMass Medical has a record of significant discoveries in identifying gene defects that elucidate how ALS causes neurons to die. He will discuss his research findings in familial and sporadic forms of ALS and Gene based therapies.
  • Genomics and the Genetics of ALS
    Jan 13, 4:00 PM
    Zoom Call
    Dr. Matt Harm from Columbia University will discuss his work on whole genome and transcriptome sequencing to bring precision medicine to amyotrophic lateral sclerosis (ALS).
  • TIPS & TRICKS. Gift your wisdom.
    Dec 16, 2020, 4:00 PM
    Zoom Call
    EverythingALS Community Holiday Webinar hosted by McFinn Lovere. McFinn comes to EverythingALS as a former ALS patient, Hospice administrator and ALS advocate.
  • Biomarkers in ALS
    Dec 02, 2020, 4:00 PM
    Zoom Call
    Guest Speaker Dr. Robert Bowser, Ph.D. will discuss Biomarkers in ALS to Aid in Earlier Diagnosis, Select Patients for Clinical Trials, and Monitor Impact of Therapies.
  • Food, Family and Holidays
    Nov 18, 2020, 4:00 PM
    Zoom Call
    Speakers will share tips for preparing food and connecting with families especially, during holidays.
  • Amylyx Centaur AMX0035 Trial Results
    Nov 09, 2020, 4:00 PM
    Zoom Call
    Our Guest Speakers, Dr. Merit Cudkowicz and Dr. Sabrina Paganoni, the principle investigators at the HEALEY Platform Trial will be discussing the results of Amylyx's ALS Drug, shows promising results in the Phase II/III Clinical Trials. They will be joined founders of Amylyx.
  • Wahls Protocol, Using Nutrition for Cellular Health
    Our Guest Speaker, Dr. Terry Wahls, MD., is the author of Wahls Protocol. She is also a patient with secondary progressive multiple sclerosis. Dr. Wahls restored her health using a diet and lifestyle program she designed specifically for her brain.

Register for Upcoming May 19th Event