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Past Events

  • Fireside Chats
    Wed, Mar 15
    Zoom call
    Mar 15, 4:00 PM PDT
    Zoom call
    Join Us! This is an opportunity to be with caring people who wish to chat, listen, share, and learn.
  • Mexiletine as a treatment for muscle cramps in ALS
    Mar 08, 7:00 PM EST
    Zoom call
  • Fireside Chats
    Wed, Mar 01
    Zoom call
    Mar 01, 7:00 PM EST
    Zoom call
    Join Us! This is an opportunity to be with caring people who wish to chat, listen, share, and learn.
  • National ALS Registry: Learn How You Can Join the Fight Against ALS.
    Feb 22, 7:00 PM EST
    Zoom call
    Dr. Mehta is the Principal Investigator for the United States congressionally-mandated National Amyotrophic Lateral Sclerosis (ALS)
  • How to support pALS/cALS best: The Role of Palliative Care
    Feb 08, 7:00 PM EST
    Zoom call
  • Speech and Orofacial Biomarkers
    Jan 25, 7:00 PM EST
    Zoom call
  • NIH’s investment in ALS research
    Jan 11, 7:00 PM
    Zoom call
    Dr. Amelie Gubitz is a Program Director in the Division of Neuroscience at the National Institute of Neurological Disorders and Stroke (NINDS), which is part of the National Institutes of Health.
  •  EverythingALS Virtual Holiday Party!
    Dec 21, 2022, 7:00 PM
    Zoom call
    Wear your favorite hat and shirt and celebrate with us!
  • Holiday Tips and Tricks
    Wed, Dec 14
    Zoom call
    Dec 14, 2022, 7:00 PM
    Zoom call
  • Sanofi Himalya trial in ALS
    Wed, Dec 07
    Zoom call
    Dec 07, 2022, 7:00 PM
    Zoom call
    Dr. Merit Cudkowicz is the Director of the Sean M. Healey & AMG Center for ALS, Chief of Neurology at Mass General, Director and the Julieanne Dorn Professor of Neurology at Harvard Medical School. Dr. Cudkowicz’s research and clinical activities are dedicated to the study and treatment of people
  • Clinical trial opens enrollment: shifting the PARADIGM with PrimeC
    Nov 30, 2022, 7:00 PM
    Zoom call
    Prior to the establishment of NeuroSense, Alon founded MediCan Consulting, a successful consultancy firm which worked and collaborated with many leading pharmaceutical R&D companies, including Mediwound, Chiasma, Teva, Sol-Gel, FutuRx, NeuroDerm and others
  • ALS Reversals: An Update for 2022
    Nov 23, 2022, 7:00 PM
    Zoom call
    Dr. Richard Bedlack grew up in a small town in central Connecticut. He went to college at William and Mary in Virginia, then back to Connecticut for an MD and Ph.D. in Neuroscience at UConn. Finally, he came to Duke where he completed his Medicine Internship, Neurology Residency, Neuromuscular Fello
  • BCI and ALS - Augmented Reality for people with ALS
    Nov 09, 2022, 7:00 PM
    Zoom call
    Dr. Heiman-Patterson is the Director of the Center for Neurodegenerative Disorders and a Professor in the Department of Neurology at the Lewis Katz School of Medicine at Temple University. She directs the MDA/ALS Center of Hope, including the clinical and laboratory research programs
  • Newsflash: Amylyx: RELYVRIO!
    Wed, Oct 26
    Zoom call
    Oct 26, 2022, 7:00 PM EDT
    Zoom call
    Dr. Paganoni is an Associate Professor at Harvard Medical School and works as a physician scientist at the Healey Center for ALS at Massachusetts General Hospital and at Spaulding Rehabilitation Hospital.Her research focuses on clinical trials and therapy development for ALS.
  • Telemedicine and You: Building Proactive, Personalized Care for all People with ALS
    Oct 12, 2022, 7:00 PM EDT
    Zoom call
    Telemedicine and You: Building Proactive, Personalized Care for all People with ALS with Brian Wallach, Dr. Eric Anderson, Dr. Danielle Geraldi, and Brook Croke.
  • Modulating Systemic Immunity as Treatment for ALS
    Sep 28, 2022, 7:00 PM EDT
    Zoom call
    Michael S. McGrath, MD, PhD – Chief Scientific Officer Neuvivo, Professor Department of Medicine, UCSF. Michael S. McGrath, MD, PhD is Professor, Departments of Laboratory Medicine, Pathology, and Medicine at The University of California San Francisco (UCSF). He has authored over 200 scientific art
  • Using induced pluripotent stem cells as a platform for understanding ALS disease mechanisms and therapeutic development
    Sep 14, 2022, 7:00 PM EDT
    Zoom call
    Dr. Maragakis is the Medical Director of the Johns Hopkins ALS Clinical Trials Unit and Director of the ALS Center for Cell Therapy and Regeneration Research and Professor of Neurology at Johns Hopkins University. The Center for ALS Specialty Care at Johns Hopkins is a world recognized leader in pro
  • Virtually bringing comfort & safety to your home
    Aug 31, 2022, 7:00 PM EDT
    Zoom call
    Homes are where we all live, work, play, and thrive. At Prev.ai, we believe that homes should grow with us, and just as our lives change, so should our homes. We are a 100% virtual fall prevention program harnessing computer vision and AI, linked to a network of trained clinicians, to provide person
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