Past Events

  • Findings from EverythingALS Studies
    Findings from EverythingALS Studies
    Jun 22, 4:00 PM
    Zoom call
    In this episode of ALS Expert Talk, join us to learn about our Findings from EverythingALS Studies
    Details
  • ALS - Unmet Needs
    ALS - Unmet Needs
    Jun 08, 4:00 PM
    Zoom Call
    Our Speaker Professor Matthew Kiernan is the Brain and Mind Centre Co-Director - Discovery and Translation.
    Details
  • The influence of infection and Inflammation in ALS
    The influence of infection and Inflammation in ALS
    May 25, 4:00 PM
    Zoom Call
    In this ALS Talk series, our speaker, MATTHEW S. MILLER PhD, Associate Professor, Biochemistry & Biomedical Sciences talk about Immunity, Virus, and the Role of Inflammation in ALS.
    Details
  • Moving from a few genes to a genetic architecture for ALS and the insights it provides
    Moving from a few genes to a genetic architecture for ALS and the insights it provides
    May 11, 4:00 PM
    zoom call
    Michael Snyder, Ph.D. Moving from a few genes to a genetic architecture for ALS and the insights it provides Michael Snyder, Ph.D., Professor in Genetics Stanford University School of Medicine Bio: 977 B.A, Chemistry and Biology, University of Rochester, NY 1978-1982 Ph.D. California In
    Details
  • Augmentative communications program for ALS
    Augmentative communications program for ALS
    Apr 27, 4:00 PM PDT
    Zoom Call
    John Costello has been a speech-language pathologist at Boston Children's Hospital for 36 years where he directs the Augmentative Communication Program and the ALS Augmentative Communication Program.
    Details
  • New Gene Therapy for ALS
    New Gene Therapy for ALS
    Apr 13, 4:00 PM PDT
    Zoom Call
    Dr. Ozdinler is an Associate Professor of Neurology at Northwestern University, Feinberg School of Medicine, focusing on understanding the biology and pathology of upper motor neurons.
    Details
  • Antisense Oligonucleotide Therapy for ALS
    Antisense Oligonucleotide Therapy for ALS
    Mar 30, 4:00 PM PDT
    Zoom Call
    Robert H. Brown Jr., DPhil, MD, the Leo P. and Theresa M. LaChance Chair in Medical Research and chair of the Department of Neurology at the University of Massachusetts Medical School (UMMS) and UMass Memorial Medical Center.
    Details
  • We need to do better Strategies to identify & validate EFFECTIVE ALS therapies & accelerate translation
    We need to do better Strategies to identify & validate EFFECTIVE ALS therapies & accelerate translation
    Mar 16, 4:00 PM PDT
    Zoom Call
    Dr. Ostrow is an Assistant Professor of Neurology in the Neuromuscular Division at Johns Hopkins. He received his M.D. and a Ph.D. in Biophysics from the State University of New York at Buffalo, followed by Medicine Internship.
    Details
  • Thoughts On Clinical Trials From the perspectives of an ALS Center Director
    Thoughts On Clinical Trials From the perspectives of an ALS Center Director
    Mar 02, 4:00 PM PST
    Zoom Call
    Our Guest Speaker, Dr. Jonathan S. Katz is a neurologist in San Francisco, California and is affiliated with multiple hospitals in the area, including Sutter Medical Center and California Pacific Medical Center. He received his medical degree from Tulane University School of Medicine.
    Details
  • The Discovery of a New ALS Rick Gene: what it tells us about the cause of ALS
    The Discovery of a New ALS Rick Gene: what it tells us about the cause of ALS
    Feb 16, 4:00 PM PST
    Zoom Call
    Our Guest Speaker, Johnathan Cooper-Knock, Ph.D. from The University of Sheffield will be presenting on a new risk gene for ALS called KANK1. The discover of this gene tells us more about the cause of ALS.
    Details
  • Expanded Access for Rare Diseases
    Expanded Access for Rare Diseases
    Feb 02, 4:00 PM PST
    Zoom Call
    Our Guest Speaker, Alison​ ​Bateman​-​House​, ​PhD​, ​MPH, MA​ ​is​ ​an​ ​Assistant​ ​Professor​ ​in​ ​the​ ​Division​ ​of​ ​Medical Ethics​ ​at​ ​NYU​ ​Grossman​ ​School​ ​of​ ​Medicine​ and a Professor of Practice in Law at University of Arizona James E. Rogers College of Law. ​
    Details
  • 2022 Outlook for ALS
    2022 Outlook for ALS
    Jan 19, 4:00 PM PST
    Zoom Call
    Our Guest Speaker, Jinsy A. Andrews, M.D., M.Sc., FAAN is an Associate Professor of Neurology, in the Division of Neuromuscular Medicine and serves as the Director of Neuromuscular Clinical Trials at Columbia University.
    Details
  • ACT for ALS: Moving Forward
    ACT for ALS: Moving Forward
    Jan 05, 4:00 PM PST
    Zoom Call
    This is a special segment to discuss ACT for ALS bill and What Does This Mean for Those Affected by ALS.
    Details
  • Respiratory Considerations in ALS
    Respiratory Considerations in ALS
    Dec 15, 2021, 4:00 PM PST
    Zoom Call
    In this event, our speaker, Dr.Heiman-Patterson, will discuss Respiratory Considerations in ALS
    Details
  • New Therapies in ALS
    New Therapies in ALS
    Dec 01, 2021, 4:00 PM PST
    Zoom Call
    In this event, our speaker, Dr. Merit Cudkowicz, will discuss New Therapies in ALS
    Details
  • Dress with Success While Living with ALS - Adaptable and Functional Fashion
    Dress with Success While Living with ALS - Adaptable and Functional Fashion
    Nov 17, 2021, 4:00 PM PST
    Zoom Call
    In this event, our speakers will discuss how to dress to Impress with ALS - Adaptable and Functional Fashion
    Details
  • Assistive Technology for Communication: From Selection to Customizations
    Assistive Technology for Communication: From Selection to Customizations
    Nov 03, 2021, 4:00 PM
    Zoom Call
    In this event, our speakers will discuss Assistive Technology for Communication: From Selection to Customizations
    Details
  • The Power of US
    The Power of US
    Oct 20, 2021, 4:00 PM
    Zoom Call
    Meet real people with ALS who have inspired others with their creative endeavors, including ALS activism, writing a memoir, working with drug makers, and joining our EverythingALS team.
    Details