Past Events

  •  Dress with Success While Living with ALS - Adaptable and Functional Fashion
    In this event, our speakers will discuss how to dress to Impress with ALS - Adaptable and Functional Fashion
  •  Assistive Technology for Communication: From Selection to Customizations
    In this event, our speakers will discuss Assistive Technology for Communication: From Selection to Customizations
  • The Power of US
    Oct 20, 4:00 PM
    Zoom Call
    Meet real people with ALS who have inspired others with their creative endeavors, including ALS activism, writing a memoir, working with drug makers, and joining our EverythingALS team.
  • A new CIRM funded clinical trial transplanting stem cells releasing GDNF into the motor cortex of patients with ALS
    Dr. Clive Svendsen did his predoctoral training at Harvard University. He received his PhD from the University of Cambridge in England, where he subsequently became a Welcome Fellow and established a laboratory focusing on stem cell research.
  • Clenbuterol for ALS: Findings From an Open Label Trial
    Richard Bedlack M.D., Ph.D. is currently a Professor of Neurology at Duke University, and Director of the Duke ALS Clinic. He has won awards for teaching and for patient care, including: best neurology teacher at Duke; Health Care Hero; Strength, Hope &Caring Award; America’s Best Doctors and more.
  • Symptomatic and Pre-Symptomatic Biomarkers for ALS Therapy Development
    Michael Benatar, MBChB, MS, DPhil, is the Walter Bradley Chair in ALS Research; Executive Director of the ALS Center; Chief of Neuromuscular Division; and Vice Chair for Clinical & Translational Research in the Department of Neurology at the University of Miami.
  • An unbiased study of blood metabolites links novel and familiar compounds to risk of ALS
    Hear from Dr Cooper-Knock, a Clinical Lecturer, funded by NIHR. He has also received grants from the Academy of Medical Sciences, the Medical Research Council (MRC), and the Motor Neurone Disease Association (MNDA).
  • Join us to #EndALS
    Aug 11, 4:00 PM
    Zoom Call
    Come meet the EverythingALS Team, and discuss how advocacy can help #EndALS. We, the people, have the power to change the face of ALS #together!
  • Expanding mechanisms and therapeutic targets for ALS
    Hear from Dr.Aaron Gitler, the Stanford Medicine Basic Science Professor in the Department of Genetics at Stanford University.
  • Contributions from the gut-brain axis to neural inflammation in ALS
    Hear from Scientific Luminary and MacArthur Fellowship winner, Kevin Eggan, Ph.D., joined BioMarin as Group Vice President, Head of Research and Early Development in 2020.
  • NURO Communication by Brain - Non-Invasive Technology
    Hear from Francois Gand, Founder and CEO of NUOS and Michael Robinson, MD,Clinical Research Physician on NURO Communication by Brain - Non-Invasive Technology.
  • BrainGate: Toward the restoration of communication and mobility for people with ALS
    Hear from Dr. Leigh R. Hochberg, Neurologist at MGH, Principal Investigator and lead Clinical Investigator of the BrainGate pilot clinical trials
  • Neuralink's Wireless Brain Machine Interface for People with Motor Impairment
    Join us in hearing from Jayant P Menon MD, MEng is a Clinical Assistant Professor of Neurosurgery at Stanford and Biomedical Engineer at Neuralink. His work at Neuralink focuses on delivering a high band-width wireless brain machine interface for patients with motor disabilities.
  • Environmental Factors In the Causation of ALS
    Join Dr.Walter G. Bradley, for an insightful seminar on his research on Environmental Factors In the Causation of ALS.
  • Digital Biomarkers in ALS
    May 05, 4:00 PM
    Zoom Call
    Join Dr.James Berry, for an insightful seminar on use of Digital Biomarkers in ALS. Dr. Berry is working to identify biomarkers to improve clinical trial methodology. His goal is to speed up the process of identifying the next drug that will slow, reverse or even prevent ALS in the future.
  • Assistive Technology for Communication, A Spectrum of Options
    Join Speech and Language Specialists, Emily Kornman and Lisa Bardach, for a webinar on Assistive Technology for Communication.
  • NU-9 and the Importance of Upper Motor Neuron Health in ALS
    Our speaker Dr. Ozdinler, Associate Professor of Neurology at Northwestern University will discuss the NU-9 and the importance of Upper Motor Neuron Health in ALS.
  • Caregiver Support Group
    Mar 28, 4:00 PM
    Zoom Call
    Join Mental Health Specialist, Mary Holt-Paolone, and Caregiver, Marie Bishop, for a caregiver support seminar.