Food, Family and Holidays
Time & Location
About the Event
We are excited to host our next EverythingALS Patient Community Meeting: ALS Families: Food, Family and Holidays. We invite you to join us and other ALS patients and families to engage in a positive setting of collaboration and community.
The meeting will be Wednesday, November 18th at 4:00 pm PDT
-5:00pm Mountain Time
-6:00pm Central Time
-7:00pm Eastern Time
The meeting will be approximately 30-45mins long followed by an open forum.
Once you RSVP the Zoom details with password will be sent via email. Watch out for the email. If you have any questions please email us at firstname.lastname@example.org
Our Guest Speakers, Dr. Anne-Marie Wills, MD MPH from Mass General, Harvard Medical School will share EAT MORE clinical trial in ALS and ways to increase calorie intake while also being health concious. Jodi O'Donnell-Ames is Founder of Hope Loves Company, Inc. will share her experience and knowlede dealing with families and children to create a special holiday times.
Jodi O'Donnell-Ames is a former teacher, author, member of Union Fire Co. and Rescue Squad and tireless advocate for Lou Gehrig's disease, or ALS (Amyotrophic Lateral Sclerosis). She is also the founder and Community Outreach Director of Hope Loves Company, a non-profit organization committed to providing educational and emotional support to children and young adults who have had or have a loved one battling ALS in their lives. She lives with her husband Benton in Titusville, NJ. Their children, all young adults, have lost a parent to ALS before the age of 11. Jodi has written two books, The Stars that Shine and Someone I Love has ALS. She was chosen as People Magazine's "Hero Among Us” and is the recipient of many awards including the Russ Berrie Making a Difference Award, the AFP (Association of Fundraising Professionals) Founder’s Award, the TIAA Difference Maker Award, the New Jersey Governors' Jefferson Award, the TCNJ Alumni Humanitarian Award and the Princeton/Mercer Chamber of Commerce Women in Achievement Award. In addition, she was invited to give a Tedx talk on Leading a Life with Purpose.
Dr. Anne-Marie Wills, MD MPH is a Neurologist at Massachusetts General Hospital/Harvard Medical School. Her research focuses on environmental risk factors and determinants of neurodegenerative disease progression, including nutrition, caffeine and pesticides. Her multi-center clinical trial of nutrition in ALS (funded by the Muscular Dystrophy Association) showed that a calorically-dense diet was better tolerated and led to fewer adverse events, including deaths, than a standard diet (Wills et al. The Lancet, 2014). She has followed up this research with the EAT MORE clinical trial in ALS (Wills et al. BMC Neurology, 2019). She is also investigating the effects of exercise interventions for neurodegenerative diseases
We look forward to seeing you at the event!