Search Results

Pickle Ball for All in Seattle on 16-17th Sept 2023 PickleBall for all in Seattle! EverythingALS and Seattle Metro PickleBall in conjunction with the City of Seattle and Seattle Parks Foundation will be hosting a "Pick leBall for All" street festival downtown September 16-17, 2023 Register here Join for a fun day! See more information below: There will be 10 pickleball courts Live music Beer garden Food trucks We are thankful for generous offer for the People with ALS and Families to participate with reserved courts. Astria PickleBall is sponsoring the paddles. If you and your family are interested in attending --- as it is a short notice --- Please register and/or email info@everythingals.org ASAP. We will put you in the VIP list. September 16-17, 2023 Downtown Seattle Intersection of 5th Avenue and Vine street, (under the monorail) between Denny and Taylor Register here

About Us We believe the technology will be a key enabler for the innovation to end ALS, we are here to bridge the gap between patients, research and technology. Our diverse team is composed of patient advocates, students, nurses, physicians, entrepreneurs, artificial intelligence engineers, biologists, ALS patients, and spiritual guidance from one person who has reversed ALS. We are here to help provide information to all of those affected by ALS. EverythingALS is a patient-focused non-profit, part of Peter Cohen Foundation, a 501(3)c organization, bringing technological innovations and data science to support efforts -- from care to cure -- for people with ALS, by offering a open-data platform for direct engagement with patients, caregivers, researchers and drug companies. PC: Peter Cohen How YOU Can Get Involved Write to us, we would love to hear from you. How did you hear about us? How did you hear about us? How did you hear about us? Submit

Alex Young Project Manager Phone: 123-456-7890 Email: info@mysite.com Address: 500 Terry Francine Street San Francisco, CA 94158 Date of Birth: March 14th, 1984 A Bit About Me Everybody has a story, and your visitors would love to hear yours. This space is a great opportunity to give a full background on who you are and what you have to offer at your next job. Double click on the text box to start editing your content and make sure to add all the relevant details you want site visitors to know. Use this space to talk about how you started and share your professional journey. Explain your core values, your commitment to the workplace, and how you stand out from the crowd. Add a photo, gallery, or video for even more engagement. Work Experience June 2025 - April 2026 July 2024 - May 2025 January 2023 - June 2024 This is a Job Description. Briefly describe your specific position, including details about important achievements and milestones. Make sure to include relevant skills and highlights, and don't forget to adjust the timeframe in the subtitle. This is a Job Description. Briefly describe your specific position, including details about important achievements and milestones. Make sure to include relevant skills and highlights, and don't forget to adjust the timeframe in the subtitle. This is a Job Description. Briefly describe your specific position, including details about important achievements and milestones. Make sure to include relevant skills and highlights, and don't forget to adjust the timeframe in the subtitle. Let's Get Social

EverythingALS is a patient-focused non-profit, part of Peter Cohen Foundation (PCF) a 501(3)c organization. Our mission is to support efforts to care for ALS patients and work to find a cure by creating a platform for direct engagement with patients, caregivers, advocates, and researchers. LOGIN > Click here to Register or Login if you are in the study You can help advance ALS Research Join one, or more, of our current studies ALS Austen Study: Advancing the Diagnosis and Prognosis of ALS from Speech Our IRB approved study is motivated by the need for early detection and improved prognostic accuracy of ALS using advanced computational technology and speech which includes both audio and video data. Click to Join ALS Radcliff Study: Multi-disciplinary focus A new IRB approved multidisciplinary ALS study is focused on walking, breathing function, and speech analysis to make progress towards a digital biomarker. You can track your own data through EverythingALS portal and App. Click to Join The ALS Gene Carrier Study of People who are Asymptomatic This study is motivated by the need for monitoring and early detection of motor and speech changes using emerging technology for individuals with the Asymptomatic ALS gene. Click to Join EverythingALS Radcliff Study Introduction Why Join the Study? Hear from Brian Andre and Vivian Rojas If you are interested in the study, please contact us Your connection to ALS I am interested to participate in * Required The Speech Study to advance drug trials The Radcliff : Multi-disciplinary Study The ALS Gene Carrier Study Are you enrolled in PREVENT ALS Study (DIALS Network at MGH/WashU or ALS Families Study at Columbia University)? Yes No Don't Know For more information click here . Do you use Assistive Devices ? For Walking For Breathing CPAP Other Cane Rollator Walker Wheelchair Other What is your Shoe size? What is your T-shirt size? Women Men Country Submit

EverythingALS is a patient-focused non-profit, part of Peter Cohen Foundation (PCF) a 501(3)c organization. Our mission is to support efforts to care for ALS patients and work to find a cure by creating a platform for direct engagement with patients, caregivers, advocates, and researchers. The ALS Gene Carrier Study Asymptomatic person with a known ALS Gene We are looking for people who carry an ALS gene but are asymptomatic and not diagnosed with ALS. We are enrolling for a study motivated by the need for monitoring and early detection of motor and speech changes using advanced computational technology. By participating in this study, you will contribute to further improve current assessment of individuals with the Asymptomatic ALS gene using physiological signals and objective measurements. Our goal is to sensitively detect early motor and speech changes in ALS using a multimodal monitoring approach. This study is conducted in partnership with Massachusetts General Hospital and Harvard Medical School with a generous support from ALS Finding a Cure . Invitees: Asymptomatic gene carriers for ALS and FTD related mutations No known family history of ALS and/or have not tested positive for an ALS- linked gene mutation 18+ years old and U.S. Resident 1 2 3 Your connection to ALS I am interested to participate in * Required The Speech Study to advance drug trials The ALS Gene Carrier Study More Info click here Are you enrolled in PREVENT ALS Study (DIALS) or ALS Families Study? Yes No Don't Know Do you use Assistive Devices ? For Walking For Breathing CPAP Other Cane Rollator Walker Wheelchair Other Women Men What is your t-shirt size? Country Submit Leveraging advanced Artificial Intelligence technologies, we aim to measure and analyze ALS motor functions. Access your secured data, anytime! Study Procedure: Wear limb sensors that record motor function data Perform digital memory and thinking tests Record speech and facial movement data Sessions are conducted in the comfort of your home This study is conducted in partnership with Massachusetts General Hospital and Harvard Medical School with a generous support from ALS Finding a Cure .

EverythingALS is a patient-focused non-profit, part of Peter Cohen Foundation (PCF) a 501(3)c organization. Our mission is to support efforts to care for ALS patients and work to find a cure by creating a platform for direct engagement with patients, caregivers, advocates, and researchers. A patient-focused non-profit bringing technological innovations and data science to support efforts, from care to cure, for people with ALS. Our Research > Latest News > Next ALS Expert Event > Download the EverythingALS App ALS is a neurodegenerative disease with no treatments . Every 90 minutes someone is diagnosed The Power of Together Take action, Join this mov e me nt This map represents our strong growing ALS community across 44 countries How did you hear about us? Submit Contact Care to Cure for ALS EverythingALS is a patient-focused non-profit bringing technological innovations and data science to support efforts -- from care to cure -- for people with ALS, by offering a open-data platform for direct engagement with patients, caregivers, researchers and drug companies. Care for People living with ALS As patient advocates, we host bi-monthly community meetings that are designed to provide patients and caregivers with the support and information that they will need throughout their ALS journey. Meet our teammate, McFinn Lovere, Spiritual Guide and ALS Reversal #42. His blogs are inspiring, and can be accessed by clicking the link below. https://mcfinn.medium.com/ Finding a cure for ALS Technology will be the key enabler for the innovation to end ALS. We support efforts to find a cure for ALS by creating a platform for direct engagement with patients, researchers and cutting edge Cloud and AI technologies. Sponsored Projects Develop speech analysis - audio and facial metrics - for early detection, clinical endpoints and better voice recognition tools for ALS in collaboration with MIT, MGH, UT Austin and Google. Funding for the first ALS Platform trial at Mass General by Dr.Merit Cudkowitz. Supporting AnswerALS and Gladstone Institute with multi-omics analysis with machine learning and big data to uncover ALS causes, subtypes, pathways, and drug targets. EverythingALS Join us on Social Media There are many ways to be involved and engaged on day-to-day conversations Join our active Facebook group. We share all our important events, research and day-to-day annoucements Follow us on twitter. We will regularity tweet announcements and research findings. Follow us on Instagram where our advocates and students share inspiring stories. Join our LinkedIn group. We will share active research ideas and dialogue. Subscribe to our YouTube channel. We will post our ALS Talk series content on YouTube channel. As seen on

Ask anything for People with ALS and Caregivers to help with ALS care to cure Future Events Expert Talks Series Fireside Chats Fireside Chat with Pathfinders Dec 17, 2025 When Dec 17, 2025, 7:00 PM EST Where Virtual Event Register Now

EVERYTHING ALS Pathfinders Everything ALS Pathfinders' vision is to empower individuals affected by ALS and their families. Our threefold mission focuses on: Our main priority is to provide support for individuals with ALS, from offering care to seeking a cure. As an Everything ALS Pathfinder, we wholeheartedly welcome you into our community, a place where you will never have to feel isolated. This is a community where you belong, where your voice is heard, and your experiences are valued. Let's come together and provide unwavering support to help each other Live a fulfilling life despite the difficulties we may face with ALS. 1. Physical Empowerment: We are dedicated to finding practical solutions and resources to alleviate the physical challenges associated with ALS, aiming to improve the quality of life for patients as their conditions evolve. 2. Mental Resilience: We're here to support you at all times. Our goal is to improve the mental well-being of people with ALS, caregivers, and their families by providing ongoing support and fostering a sense of community. You are not alone in this journey. 3. Spiritual Support: By addressing spiritual concerns, we aim to provide a comprehensive approach to healing, ensuring individuals find solace and meaning amid the challenges they face. My name is Willard Blackwell . I was diagnosed with ALS in May of 2022. I had fallen while playing pickleball, which prompted the doctors to investigate my symptoms. As a professional singer and musician leading the Gator Nation Band, I have encountered daily challenges due to the loss of full use of my hands or legs. I no longer perform with my band but recently sang with friends. I still try to do the things I love as long as they don't worsen my symptoms. I have learned about conserving energy, and I try not to overexert myself so I can keep moving forward. I find joy in music and comedies – anything that brings a smile to my face. This experience with ALS has taught me a lot about maintaining a positive attitude while battling this terrible disease. Initially, I was reluctant to ask for help. My friend, Kathleen, noticed my hesitation and called in my soul tribe because she knew I needed more assistance. I understand that seeking help can be difficult, but it can also be incredibly rewarding. We don't have to go through this alone. It's much better to have support to help you navigate your way. If you feel that I can support you on your journey, please don't hesitate to get in touch with me at willard@everythingals.org My name is McFinn Lovere . My experience of reversing my ALS put me on the path to being of service to others with this devastating disease. At my weakest point I was only able to move two fingers and my head. I know what 24-hour daycare means. I have experienced the feelings you take on from isolation. I had one caregiver who was excellent. I had another caretaker who looked at it as a job, not compassionate service. It is so important for your mental stability to have someone caring for you who understands the stress ALS creates for pALS and their families. I hope my and my family's experiences will help relieve some of the Stress ALS brings into your life. Your Everything ALS Pathfinder, McFinn, is reaching out; reach back. mcfinn@everythingals.org I’m Michael Montemayor , and I have a wife and three kids. We live in Washington State. I graduated from Washington State University in 2003 with a business degree. I was diagnosed with ALS in July 2023 . A lot has changed for me and my family since my diagnosis. I struggle to do some of the everyday simple tasks, but there are still a lot of things I can still do. What keeps me going is my trust in God, knowing He has a plan for me and that He is in control, which gives me peace. I also have lots of help and support from family and friends. My plan is to keep fighting against ALS and not let it control my life. I have met lots of other ALS patients who have been a blessing to me, and I hope to be able to help others with ALS as well. God Bless!! michael@everythingals.org My name is Shawn Penno. I think my years of work in the field and advocating for workers will translate nicely into helping pALS with their journey. Please reach out if you need someone to 'vent' to, help with problems, or just someone to talk to alleviate the isolation. I live in BC, Canada, and have been a care aide for 25 years, 2 in long-term care and the rest in the Community. I was diagnosed in September '23 with limb onset ALS after 16 months of 'investigating,' with a diagnosis of carpal tunnel, thoracic outlet syndrome, and such. The devastation of hearing THAT Dx—we were hoping for anything but that—really made me soul-search. Do I want to Drop everything and make a bucket list, or…I decided that my work is what really fulfills me; the gratitude I get from my clients is priceless. Work gives me the focus to stay positive and live in the moment. Something I teach in my class is we want to "enable our clients, not disable them.” This has taken on a whole new meaning now that I'm the one becoming disabled! I WANT to do what I can while I still can! I even built my own wheelchair ramp right after my Dx while still having the arm strength to do it! I can be reached at shawn@everythingals.org Siddu (Sridhar) Tummala is the CEO of Cresido Analytics. Siddu can be reached at siddu@everythingals.org My name is Anthony (Tony) Martin Varela . My better half is named Cheri and we live in Huntington Beach, California. I have two children and two grandchildren with one on the way!! I am a retired Firefighter who worked for the City of Los Angeles. I worked 35 years before Retirement. I love outdoor activities and try to get out and enjoy the fresh air as often as I can. I was diagnosed with ALS in April of 2023. After two years of wondering why I was losing weight and strength, a paramedic friend told me to see a neurologist. After doing so, I received the bad news. I keep a positive outlook as much as I can, but staying busy seems to keep my mind off of it and works the best. I am looking forward to helping in any way I can. I can be reached at tony@everythingals.org My name is Ivonne Vaughn. On April 13, 2024, I was at a lovely church garden party. I tried to step up on a platform with my right leg, it was too weak to support me. I stepped down and stepped up with my left leg. On January 16, 2025, after four MRIs, two X-Rays, one muscle biopsy and three Nerve Conduction Studies (NCS) and Electromyography (EMG) I was diagnosed with limb onset ALS. The Doctor said, “you have ALS,” I said I know I have A Loving Savior. He smiled and said no Amyotrophic Lateral Sclerosis. On the 2.5-hour drive back to our home my husband told me he was 99% certain it was ALS months earlier. He knew about ALS; I had much to learn. I threw myself into getting educated and learning all I could about ALS, available ALS resources/organizations and how to live and accept the incremental changes I was experiencing. I did this by attending a plethora of ALS groups and webinars. In ALS support groups, I see I am not alone and learn about living everyday with ALS. My goal is to help and encourage those with ALS (pALS), those caring for ALS loved ones (cALS) and to share the HOPE I have in my ALS journey. We all need good listeners in our lives. As a Pathfinder, I am here to listen, support, and encourage you. "It is during our darkest moments that we must focus to see the light." - Aristotle "Try to be a rainbow in someone's cloud." - Maya Angelou I can be reached at ivonne@everythingals.org My name is John Hudacek . The day I received my diagnosis, I knew this could be the end or a new beginning. After spending the first three months being scared, I realized that the difference was in my mind and my attitude. So, I decided to look at this chapter of my life differently. Early on I saw that many of us pALS are looking for that ray of light breaking through the drizzling overcast. If you look hard enough, you will find it. I hope to share my life experience to help others find courage and resilience and develop the skills to help us cope while others find that cure. As a veteran, I can assist other vets find the resources that make a difference in this journey. I was diagnosed in November 2021 with a limb-onset, non-dominant arm. Slow progressing, just now starting to weaken my other arm. Now is the time to discover the hidden strength in each of us. I am honored to hold your hand on this journey. You can contact me at johnhudacek@everythingals.org My name is Kathleen McCallum , and for the past two years, I have been helping my friend Willard, who was diagnosed with ALS in 2022. I asked him if he wanted to do a documentary to help him navigate his ALS in a creative way and bring hope. Our Journey of Hope documented the positive steps we took to help Willard’s symptoms, extend his time, and detox his body in hopes of reversing his ALS symptoms. Prior to helping Willard, I fought for my mother when she had breast cancer and, later, level 4 stomach cancer. At the end of her life, she also had Lewy Body Dementia. My dad had Alzheimer’s disease, and we participated in many Alzheimer’s fundraisers as well. I have studied alternative healing since the 1980s, and I am a certified microbiome nutritional coach. My goal is to bring more hope to those suffering from this horrendous ALS disease and to bring more awareness about ALS to the world. There is hope, and if I can help provide it for you, please contact me at kathleen@everythingals.org My Name is Faith Oremland . My son was diagnosed with ALS in January 2022. If you are dealing with the challenges of being a parent to a child with ALS, issues with family communications, and learning how to live positively in the face of ALS. Being an Everything ALS Pathfinder gives me the opportunity to help others on our ALS journey. You are not alone! It's about sharing our stories, listening to each other, providing helpful information, and being there with compassion and love. "I am committed to doing whatever possible to help my son and other people with ALS and their families live their best lives. We can do this working together with hope and positivity!" My career was in health data information systems. I am an amateur storyteller of tales that teach life lessons. I love working with the people at Everything ALS and also volunteer with Compassionate Care ALS (CCALS) Mothers of ALS and the I Am ALS Legislative Affairs Team. Please get in touch with me at faith@everythingals.org These days, I live a purpose-driven life! I do what I can…WHILE I CAN! If I can make your journey any easier, or if you have any questions, let me help you find answers. My hope is to be the resource you need. Feel free to contact me at joe@everythingals.org I spent 15 years in radio and 25 years in the Music Industry (in Nashville). Through the years, I’ve worked in Finance and Real Estate and owned a bakery! Currently, I live in Baton Rouge, LA. That was what I DID…it wasn’t WHO I AM! I was diagnosed with ALS in 2012…thankfully, it’s a very slow-progressing form. When ALS took my speaking (I slur!), my whole world changed, and I lost my career. For a guy who’s always made his living talking…this is a difficult pill to swallow. But I am more than just my diagnosis! My skill set can STILL be put to good use! Even though MY speech is failing, I try to give ALS Patients a voice! Contact me at joe@everythingals.org My name is Monica Martinez , and I live in Texas. At 48, I was diagnosed with Bulbar Onset ALS. In late 2019, I noticed trouble enunciating words, which soon turned into slurred speech. As a police officer, my voice was crucial. One day, after speaking on the radio, a fellow officer texted me, asking if I had been drinking because I sounded drunk. This prompted me to seek medical advice. After years of seeing various doctors and undergoing speech therapy, in March 2023, my neurologist gave me devastating news: "Monica, you will never be able to carry your firearm again." I was bewildered. "Monica, you have Bulbar Onset ALS. I'm so sorry. You should get your affairs in order." The diagnosis of ALS was heartbreaking, but giving up my career was even harder. At 49, I was forced into early retirement after 24 years of service. Since my diagnosis, I found solace in the ALS community, realizing I was not alone. This new family provided support, and I reciprocated. Together, we are stronger. Welcome to Pathfinders! We are here to support, guide, and walk with you on this journey. You are not alone! WE GOT THIS! TOGETHER WE ARE BETTER THAN ALS! I can be reached at monica@everythingals.org My name is Doug Hill. I am 47 years old and a father of three daughters, ages 16, 14 and 12. I am a Cornell Chemical Engineer graduate, class of ’99, and have been working full time at a specialty chemical company for 26 years now. My wife is a middle school Spanish teacher. I was diagnosed with bulbar onset ALS in January of 2024. I love playing and watching sports – from football, baseball, basketball, tennis and golf to downhill skiing (my main passion!). As a family, we also enjoy small venue music concerts with artists that really connect with the audience. Since my diagnosis, I have needed to adapt continuously during my journey. It’s like a puzzle always needing a solution! There is one thing that doesn’t and will never change – my fight, my grit, my determination and my unwavering hope. ALS doesn’t define me; it has redefined me. In fact, it makes me stronger, as a Pathfinder, I am an active participant and advocate in the ALS community, and I would love to connect with you to share what I’ve found and how it has helped me in this journey. I can be reached at doug@everythingals.org My name is Cathy Cummins , like most pALS, I’ve lived an exciting and fulfilling life. And, I’m not done yet. Diagnosed with PLS in 2005, then ALS in 2008, I began a healing journey. In 2004, with left leg symptoms, I needed crutches; in 2005, a chair; and by 2008, a power chair. As a chiropractor, professor, and elite athlete, my life changed dramatically, and I felt lost. In 2009, I passed out on stage while singing with my barbershop quartet. Now, I have swallowing and autonomic issues. This journey is not easy. When I was diagnosed, my team rallied and created a plan that included a physical, chemical, and spiritual approach to healing. I’ve learned so much about myself along the way. I feel like having ALS has offered me a path to discover what life is really about. For me, it's been about balancing my energy, learning to adapt. This wasn’t possible for me to do alone. I believe we are on this journey for a reason, and we are stronger together. If you would like me to share your Journey. Reach out, and I will be a Pathfinder with you. I can be reached at cathy@everythingals.org

EverythingALS is a patient-focused non-profit, part of Peter Cohen Foundation (PCF) a 501(3)c organization. Our mission is to support efforts to care for ALS patients and work to find a cure by creating a platform for direct engagement with patients, caregivers, advocates, and researchers. Currently not enrolling ALS Radcliff Study : Multi-disciplinary focus

Austen Speech Study EverythingALS is building an active, growing citizen research participants to draw from the community of over 7,000 People with ALS and Caregivers who collaborate directly with leading minds at eminent research institutions, jointly executing IRB-approved studies with EverythingALS for digital biomarker research to detect subtypes of ALS progression, early diagnosis and for remote patient monitoring. Aims: Collect Data Create Objective Measures Creation of a robust, longitudinal data collection - DEI achieved Fostering engagement Data & Research Output: Cohort characteristics 1200 HOURS OF DATA 7000 SESSIONS 850 PARTICIPANTS Citizen Driven Rapid Recruitment EverythingALS implemented a grassroots effort to recruit participants from our patient support community. With a reach that expands to 7,000 email subscribers, over 300,000 YouTube viewers, and 5,000 total attendees to our weekly Fireside Chats and ALS Expert Talk Series presentations, our organic method of recruitment is built on the solid reputation EverythingALS.org has secured by gaining patient trust as a leader in the research field. The membership comprises people with ALS in different stages or diagnoses, their caregivers, and healthy research participants (controls). Broad Geographic Distribution In collaboration and consultation with people with lived experiences with ALS (pALS and cALS) and in collaboration with leading clinical research experts and clinicians treating people with ALS, EverythingALS was convinced that the gaps could be filled by taking the tests out of the clinic and taking them to the participants, in their own homes. This new methodology, rooted in remote monitoring, sensor-driven data capture, and human experience support, hopes to foster engagement and collaboration between pALS, caregivers, researchers, and drug companies through an open-innovation platform approach to further studies using other digital data capture modalities beyond speech. This allowed for pALS from all over the country to contribute to the Austen Study. Ethnic Inclusion Access and Equity Remote study engagement, driven by diverse content marketing and awareness-raising of the EverythingALS mission and Citizen-driven research, has consistently delivered greater participant diversity compared with natural history study demographics performed on-site. However, recruitment and participation among African Americans remain lower than desired to achieve representation targets among all major ethnicities. EverythingALS is committed to improving this representation through direct feedback and guidance from black and African American participants, as well as collaborating with key stakeholders in engaging African American potential participants.” Request access to the Open Data Submit

Careers Join us to help everyone impacted by ALS participate in Citizen-Driven Research and benefit from Open Innovation. EverythingALS offers satisfying careers for people ready to bring their talent and skills to the fight of finding a cure for ALS. We also offer critically important volunteer opportunities that empower all kinds of people to share their unique gifts to help drive our mission forward Boston Area, Remote Community Engagement Manager Reporting to the Executive Director, we are seeking a Community Engagement Manager with excellent project management and digital communications skills to join our dynamic team. This role is crucial in driving our discovery and engagement with our.. Read More

EverythingALS is a patient-focused non-profit, part of Peter Cohen Foundation (PCF) a 501(3)c organization. Our mission is to support efforts to care for ALS patients and work to find a cure by creating a platform for direct engagement with patients, caregivers, advocates, and researchers. ALS Radcliff Study : Multi-disciplinary focus We are looking for Individuals with early symptom who have been diagnosed with Possible, Probable or Definite ALS Our IRB approved study is motivated by the need for early detection and improved prognostic accuracy of ALS using advanced computational technology. By participating in this study, you will contribute to a growing large ALS dataset and further improve current assessment & treatment of individuals diagnosed with ALS using physiological signals and objective measurements. Your connection to ALS I am interested to participate in * Required The Speech Study to advance drug trials The Radcliff : Multi-disciplinary Study The ALS Gene Carrier Study Are you enrolled in PREVENT ALS Study (DIALS Network at MGH/WashU or ALS Families Study at Columbia University)? Yes No Don't Know For more information click here . Do you use Assistive Devices ? For Walking For Breathing CPAP Other Cane Rollator Walker Wheelchair Other What is your shoe size? Women Men What is your t-shirt size? Country Submit What is the purpose of the study? This is a fully remote, observational, exploratory, non-controlled, non-drug study in people with Amyotrophic Lateral Sclerosis (ALS). The study seeks to explore whether specific digital measures gathered at home warrant further investigation as tools for monitoring clinical function and disease progression in ALS. This study is completely remote - all assessments will be completed in your home. The necessary equipment for the study will be sent to your house, which includes: Spirometers for breathing tests Feet sensors for walking analysis and an android smartphone EverythingALS mobile App will make it easy for you to navigate the study. The format consists of weekly ALS-FRS-R & proctors sessions with a research co-ordinator. Your total participation will be 9-12 months Any gender, age 18 Years and older Diagnosed with possible, probable, or definite ALS by a neurologist Able to walk without help (without using a cane or walker. Ankle-foot orthotics (AFO) are allowed, as long as the study sole inserts can be accommodated within their shoes. Are comfortable going up and down stairs without help safely. Use of hand railing is permitted and encouraged Exclusion Criteria: Inability to read, understand, and speak English Use of a ventilator, or non-invasive mechanical ventilation for more than 16 hours daily The full list of requirements for the study can be discussed with the study coordinator What is the eligibility criteria? What procedures will I participate in if I enroll in the study? How long will I be in the Study? Protocol Number: 2022-09-RAD-PI42 | Sponsor: Peter Cohen Foundation Contact Us Email: rad@everythingals.org