Wed, Oct 20 | Zoom Call

The Power of US

Registration is Closed
The Power of US

Time & Location

Oct 20, 4:00 PM
Zoom Call

About the Event

We are excited to host EverythingALS Community Event: The Power of US

We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community.

The meeting will be on Wednesday, October 20th 2021 at 4:00 pm PT

-5:00pm Mountain Time

-6:00pm Central Time

-7:00pm Eastern Time

The meeting will be approximately 45-60mins long followed by an open forum.

Once you RSVP the Zoom details with password will be sent via email. Watch out for the email. If you have any questions please email us at info@everythingals.org.

Our speakers: Hira Ahluwalia, Ph.D. is the author of the book “Keep On Ticking” which is a story about one man’s approach to chronic progressive disease. Hira also owns his own consulting business as a corrosion and materials engineering expert. After 2.5 years with symptoms, Hira was diagnosed with ALS in 2016.

Amanda and Eric Stevens are the founders of Stevens Nation. Eric was diagnosed with ALS a month after his wedding. Together they created Stevens Nation which focuses on getting people to contact their representatives and ask them to co-sponsor bills that help those with ALS and not a lot of time. The goal is to fight for legislation that would make potential treatments available to patients outside of exclusive clinical trials.

Sandy Morris was diagnosed with ALS in 2018. Since her diagnosis, she has been on a mission to ensure that protocol is created as well as pathways for those living with ALS. Sandy runs the Patient Advisory Council at I AM ALS, and helped set up legislation building the ALS Caucus. Sandy created the Patient Centric Trial Design, which rates clinical trial design for those looking to be in a trial.

Austen Eadie-Friedmann is the newest member and Patient Advocate and Industry Advisor on the EverythingALS team. He was diagnosed with ALS in 2019. Austen Eadie-Friedmann held Director, Patient & Employee Experience at Alexion Pharmaceuticals' Human Resources team. Austen brings a wealth of knowledge to our EALS team!

​We look forward to seeing you at the event!

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