Wed, Feb 10 | Zoom Call

Behind the Curtain of ALS Clinical Trials & Alexion CHAMPION ALS Phase 3 Clinical Trial update.

Registration is Closed
Behind the Curtain of ALS Clinical Trials & Alexion CHAMPION ALS  Phase 3 Clinical Trial update.

Time & Location

Feb 10, 4:00 PM
Zoom Call

About the Event

We are excited to host EverythingALS Community Event: Behind the Curtain of ALS Clinical Trials & an Overview of Alexion CHAMPION ALS Trial.

We invite you to join us and other ALS patients and families to engage in a positive setting of collaboration and community.

The meeting will be on Wednesday, February 10th 2021 at 4:00 pm PT

-5:00pm Mountain Time

-6:00pm Central Time

-7:00pm Eastern Time

The meeting will be approximately 45-60mins long followed by an open forum.

Once you RSVP the Zoom details with password will be sent via email. Watch out for the email. 

If you have any questions please email us at

Our Speakers from Alexion Pharmaceuticals, Wendy Erler will take us behind the curtain of clinical trials process and overview. Wendy has built her patient advocacy career in many rare disease communities and oncology. Wendy Erler is the Vice President of Patient Experience, STAR and Advocacy at Alexion Pharmaceuticals where she is responsible for leading the enterprise innovation model to gather and incorporate patient insights throughout the drug development and commercialization processes. She leads the Global Patient Advocacy function and has responsibility the advocacy team. Previously, Ms. Erler was on the executive leadership team at Wave Life Sciences where she led Patient Advocacy and Commercial. Wendy graduated from Miami University and earned her MBA from St. Joseph’s University. Dr. Erik Kuppmerman will give us an update on Alexion CHAMPION ALS phase 3 Clinical Trial. Erik is an Executive Director and Global Project Team Leader for the Amyotrophic Lateral Sclerosis (ALS) and Guillain-Barré syndrome (GBS) programs at Alexion pharmaceuticals. His passion is leading cross functional project teams, developing and communicating asset strategies in oncology and neurology drug development, both early and late stage. His goal is to continue to bring innovative new medicines to patients. He earned his Doctor of Philosophy (Ph.D.) in Biomedical Sciences from UC San Diego.

​We look forward to seeing you at the event!

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