In the News

NOVEMBER 2022

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Digital Biomarkers Could Reshape CNS Diagnosis, Treatment

The life sciences industry continues to embrace artificial intelligence (AI), algorithms, and machine-based learning in its pursuits to collect and analyze important pharmaceutical and healthcare data.

NOVEMBER 2022

Woman's Husband's Health Journey Inspires EverythingALS.

NBC10’s Erin Coleman speaks to Everything ALS founder Indu Navar about her husband’s own ALS diagnosis and how the group is working to better ALS research. 

NOVEMBER 2022

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Walk to Defeat ALS happening in North Las Vegas.

Indu Navar, founder of EverythingALS, joined us to talk about how your participation helps raise funds and awareness.

NOVEMBER 2022

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Non-profit conducts study to diagnose ALS quicker.

In the 150 years since ALS was discovered there is still no cure or single test to diagnose the disease.

NOVEMBER 2022

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New technology helping ALS patients in Louisiana.

ALS, often called Lou Gehrig’s disease, is a progressive motor neuron disease that gradually robs people of their ability to walk, talk, swallow, and eventually breathe.

SEPTEMBER 2022

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Q&A With Indu Navar, founder of Everything ALS.

Indu Navar, founder of Everything ALS, speaks with Pharm Exec about how she lost her husband to the disease and how she's trying to improve the way its diagnosed.

SEPTEMBER 2022

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EverythingALS Joins Forces with Aural Analytics, FeetMe, ZEPHYRx and Others for a First-Of-Its-Kind ALS Research Study.

Patients can now apply to participate in citizen-led multi-modal digital biomarkers study for prognosis and diagnosis of ALS.

AUGUST 2022

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Groundbreaking research involving artificial intelligence could diagnose ALS patients sooner

Five thousand people in the U.S. are diagnosed with a neurological disease called ALS every year. Medical experts say it typically takes an average of two years to diagnose, but new research will likely make that timetable a lot shorter.

AUGUST 2022

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NeuroSense Joins EverythingALS Open Innovation Consortium; Set to Enroll US and EU Patients in Phase IIb Study

 EverythingALS, a patient-focused non-profit that brings together patients, caregivers, physicians, researchers, and pharmaceutical companies using technological innovations and 

AUGUST 2022

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‘Death by 1,000 cuts:’ How emerging tech could change the journey for ALS patients

In 2016, Indu Navar’s husband, Peter Cohen, experienced the first symptom of what turned out to be amyotrophic lateral sclerosis (ALS), a progressive degenerative disease commonly known as Lou Gehrig’s disease.

JULY 2022

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Healthbeat: New ALS research driven by patient-focused non-profit

SCRANTON, LACKAWANNA COUNTY— New research is underway to better understand and treat ALS, a difficult disease to diagnose with no known cure. ALS patient Paul Miller of Scranton is one of the participants.

JULY 2022

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Bentonville man works to help diagnose ALS sooner

BENTONVILLE, Ark. (KNWA/FOX24) — A Bentonville man is dedicating his life to advocating for people with ALS and trying to help diagnose the disease sooner.

JULY 2022

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These 2 Surprising Traits May Predict ALS, New Research Says

Amyotrophic lateral sclerosis (sometimes called Lou Gherig’s disease, or ALS) affects around 15,000 Americans, with about 5,000 receiving a new diagnosis each year, according to the Centers for Disease Control and Prevention

JUNE 2022

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Continue that momentum from the ALS Ice Bucket Challenge by getting involved in a unique study - New Day NW

Researchers want every American to start recording their voice daily. They believe this data could be used to eventually develop cures for Alzheim

MAY 2022

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Patients giving voice to ALS research

Back in 2014, millions of people poured icy water over their heads to spread ALS awareness and support research for the devastating neurodegenerative disease.

Now tech developers want to hear your voices. 

MAY 2022

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Live At 9: Researchers Collecting Audio and Video to Help ALS Detection

Remember the summer Americans took time to dump buckets of ice water on their heads to help fight the deadly disease ALS? This summer, there’s a more comfortable way to help researchers learn about ALS and other neurological disorders. 

MAY 2022

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A Connecticut man is battling a fatal disease with ‘enormous courage’. Love and his work with an ALS group give him ‘purpose’

Three years ago Austen Eadie-Friedmann, 38, had a dynamic career in the pharmaceutical/biotech field working for a Fortune 500 company and living in exciting places such as New York City, Boston and Europe, with his husband, William DeGregorio.

FEBRUARY 2022

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San Francisco based nonprofit launches new ALS research

A San Francisco-based nonprofit is recruiting average people to take part in ALS research

KCBS Radio’s Keith Menconi explains. 

FEBRUARY 2022

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Mitsubishi Tanabe Pharma joins EVERYTHINGALS consortium to help accelerate biomarker discovery for Neurological 
diseases

February 28, 2022 (San Francisco, CA) -- Today, EverythingALS.org (EALS), a patient-centric, citizen-based California nonprofit accelerating the discovery of digital biomarkers for neurological diseases such as amyotrophic lateral sclerosis (ALS), announced that Mitsubishi Tanabe Pharma Holdings America, Inc.

DECEMBER 2021

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ALS, Lou Gehrig’s Disease, takes many lives, Everything ALS is doing

Deb Fabricatore lost her younger brother to ALS in 2014, and became involved in ALS advocacy. Indu Navar lost her husband in 2019 and immediately stepped up into action by building a nonprofit devoted to honoring her husband.

NOVEMBER 2021

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Open-Data Platforms for Direct Engagement with Patients, Researchers, and Pharma

Indu Navar, CEO and Founder of EverythingALS, explores the roles of Artificial Intelligence, Machine Learning, and Brain Computer Interface in the search for a cure for ALS. She will also share innovative research studies on ALS detection, how Pharma can work with and support ALS patient advocates, and her key leadership lessons for digital health entrepreneurs and innovators.

NOVEMBER 2021

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Bay Area Nonprofit Seeks 300 Volunteers in ALS Speech Study

SAN FRANCISCO (CBS SF) -- A Bay Area nonprofit dedicated to advancing research on an incurable -- and fatal -- disease of the nervous system is looking for 300 more people by the end of this month to participate in the largest-ever research project on the illness.

OCTOBER 2021

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EverythingALS Launches “Stories and Innovation in ALS” Podcast

October 21, 2021 (Silicon Valley, CA) – For an inside look at how ALS impacts patients and their caregivers as well as the innovations that researchers and clinicians are coming up with to find biomarkers, treatments, and cures for this life-threatening disease, start listening to the EverythingALS podcast,

JULY 2021

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Canada has been an early leader in the AI space and there is no shortage of activity flourishing across the country. Today, we welcome Fanny Sie from Roche Canada and Indu Navar of Everything ALS to talk about machine learning and the End ALS Kaggle Challenge.

JULY 2021

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New project to better identify and treat ALS uses AI and data sharing

I n health, science begins with the patient. Roche believes that the only way to improve the way Canadians access care is by working with all stakeholders, including public and private organizations, patient communities and citizens.

APRIL 2021

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Richard Sperry, Head of Research Partnerships and Collaborations at EverythingALS

Richard Sperry, Head of Research Partnerships and Collaborations at EverythingALS, speaks about the use of biomarkers to better understand the progression of ALS. With the help of artificial intelligence, EverythingALS and their partners, Modality.ai, are tracking speech patterns to add to an expanding collection of ALS research.

APRIL 2021

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EverythingALS Selected to Present at the American Academy of Neurology Annual Meeting, April 17-22

April 16, 2021 (Los Altos, CA) – EverythingALS, a California nonprofit dedicated to bringing technological innovations and data science to support people with ALS, has been selected to present its scientific research at the American Academy of Neurology (AAN)

APRIL 2021

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Accelerating Rare Disease Research | Indu Navar | TEDxSantaCatalinaSchool

n this moving, personal talk, Indu Navar tells how she lost her husband, Peter Cohen, to ALS and what she is doing to bring together patients, families, researchers and people everywhere to change the way that rare diseases are looked at.

MARCH 2021

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The Story of Modality.AI: HealthTech Award Winner

HealthTech Networking Club member and winner of the HealthTech Startup Award in January David Suendermann-Oeft, CEO and Founder of Modality.AI, spoke with the bene : studio team about what inspired him to start the company, their biggest achievements so far, and advice for startup leaders in the digital health space.

MARCH 2021

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‘End ALS Challenge’ Invites AI Community to Tackle 3 Key Questions

Roche Canada’s Artificial Intelligence Centre of Excellence (AI CoE), in collaboration with Answer ALS and EverythingALS, opened a challenge that asks the global artificial intelligence (AI) community to model solutions for key questions in amyotrophic lateral sclerosis (ALS).

MARCH 2021

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Roche Canada Artificial Intelligence Centre of Excellence opens digital competition to tackle ALS

MISSISSAUGA, ON, March 18, 2021 /CNW/ - The Roche Canada Artificial Intelligence Centre of Excellence (AI CoE) is excited to collaborate with Answer ALS and EverythingALS to launch an initiative called the End ALS Challenge, with the support of ALS Society of CanadaOntario Brain Institute (OBI) and NetraMark Corp

MARCH 2021