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Harvard medical, MGH, Temple University, IBM, MIT EVERYTHING ALS Scientific Advisory Board James Berry, MD, MPH Neurologist at Massachusetts General Hospital James Berry, MD, MPH, is a Winthrop Family Scholar in ALS Sciences at Massachusetts General Hospital (MGH); Director, MGH Neurological Clinical Research Institute; and Chief, Division of ALS and Motor Neuron Diseases. In these roles, he provides care for people with ALS and works as an ALS researcher designing, overseeing and implementing trials focused on the identification of markers of ALS in digital, blood and spinal fluid. He also collaborates broadly with researchers around the globe on these biomarker efforts. Raquel Norel, PhD Research Staff Member at IBM Digital Health Raquel (Kely) Norel, PhD, is a Research Staff Member in the Computational Biology Center at the IBM T. J. Watson Research Center. At the Digital Health Lab, Dr. Norel and team implements automatic language-based analysis for neuropsychiatric and neurodegenerative assessment by using machine learning, signal processing and natural language processing. Their work aims to gain insight in disease detection and progression. Ernest Fraenkel, PhD Professor at Massachusetts Institute of Technology Ernest Fraenkel, PhD, is a Professor of Biological Engineering at MIT, where he oversees a laboratory developing computational and experimental approaches to search for new therapeutic strategies for diseases, especially diseases of the central nervous system. Their work uses machine learning, AI and bioinformatics to integrate molecular, clinical and behavioral data to understand how diseases develop and to suggest new directions for drug development. Lyle Ostrow, MD, PhD ALS Clinician-Scientist at Temple University As Chair of the DOD ALS Research Programmatic Panel , he led recent efforts to develop and refine funding mechanisms to help novel treatments move though the drug development pipeline, prioritize biomarker development, and encourage open data and resource sharing. He also Directs an ALS Postmortem Tissue Research Core in collaboration with the CDC National ALS Registry which integrates clinical, pathological, and genomic data with autopsy tissue samples and slides – all made broadly available to researchers around the world.

Past Events Palliative Care for ALS - What is it? How can it help? How to access it? with Dr. Kara Bischoff Virtual Event Details Updates on ALS Clinical Trials from Regeneron and VectorY Virtual Event Details Fireside Chat with Pathfinders Oct 22, 2025 Virtual Event Details Signals from The Outer Limits: What I've Learned from Slow Progressors and ALS Reversals, and How I Am Trying To Make... Virtual Event Details ALS BioBanking in the 21st Century with Dr. Brent Harris Virtual Event Details Fireside Chat with Pathfinders Sept 24, 2025 Virtual Event Details Genetics and ALS: What New Discoveries Mean for You and Your Family with Ms. Jennifer Roggenbuck Virtual Event Details Tracking the Invisible: How Science Is Revealing ALS's Environmental Roots with Dr. Eva Feldman Virtual Event Details Fireside Chat with Pathfinders August 27, 2025 Virtual Event Details Barriers to ALS Therapy Development: Forging a Path Through with Dr. Shafeeq Ladha Virtual Event Details Is ALS a recoverable disease? Insight from Tofersen and the role of peripheral nervous system plasticity Virtual Event Details Fireside Chat with Pathfinders July 30, 2025 Virtual Event Details Breathing in ALS: Insights from a Clinical Research Program for Respiratory Care in ALS with Dr. Jason Ackrivo Virtual Event Details Building the Motor Pathway In Vitro to Understand ALS with Dr. Arens Taga Virtual Event Details Fireside Chat with Pathfinders July 2, 2025 Virtual Event Details The ALS Gene Carrier Study : Help us learn about detecting early motor and speech changes in ALS with Dr. James Berry Virtual Event Details Let's Stay in Touch! Preserving nerve-muscle contacts to battle ALS with Dr. Richard Robitaille Virtual Event Details Nutrition & EverythingALS App Office Hours Virtual Event Details Load More

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All Posts Care Resources Treatments & Protocols Search madhavi35 Oct 14, 2021 3 min EverythingALS Launches “Stories and Innovation in ALS” Podcast PRESS RELEASE Hosts Lisa Pecoraro Deegan and McFinn Lovere Interview Top Researchers, Clinicians, Patients, and Caregivers for an Inside... 135 views 0 comments Post not marked as liked indunavar Mar 29, 2021 2 min EverythingALS Selected to Present at the American Academy of Neurology Annual Meeting, April 17-22 April 16, 2021 (Los Altos, CA) – EverythingALS, a California nonprofit dedicated to bringing technological innovations and data science... 278 views 0 comments Post not marked as liked

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