Past Events

  • Our speaker Dr. Ozdinler, Associate Professor of Neurology at Northwestern University will discuss the NU-9 and the importance of Upper Motor Neuron Health in ALS.
  • Mar 28, 4:00 PM
    Zoom Call
    Join Mental Health Specialist, Mary Holt-Paolone, and Caregiver, Marie Bishop, for a caregiver support seminar.
  • Our speakers, Randy Fishman and John Hansen-Flaschen, MD from University of Pennsylvania. Dr. Hansen-Flaschen founded the Jay and Randy Fishman Program for Home Assisted Ventilation for People withwithin the Harron Lung Center at Penn.
  • Our speaker, Dr. Nathan Staff from Mayo Clinic, will share the phase 2 study on mesenchymal stem cells derived from patient adipose (fat) tissue as therapy for ALS.
  • Feb 24, 4:00 PM
    Zoom Call
    Our speaker, Paul Allan Cox, will share his journey that led to discovery of L-Serine as a potential drug for ALS.
  • Our speakers from Alexion Pharmaceuticals will share this very important knowledge -- Behind the Curtain: clinical trials process and overview & update us on Alexion CHAMPION ALS phase 3 Clinical Trial.
  • Jan 27, 4:00 PM PST
    Zoom Call
    Dr. Bob Brown from UMass Medical has a record of significant discoveries in identifying gene defects that elucidate how ALS causes neurons to die. He will discuss his research findings in familial and sporadic forms of ALS and Gene based therapies.
  • Jan 13, 4:00 PM
    Zoom Call
    Dr. Matt Harm from Columbia University will discuss his work on whole genome and transcriptome sequencing to bring precision medicine to amyotrophic lateral sclerosis (ALS).
  • Dec 16, 2020, 4:00 PM
    Zoom Call
    EverythingALS Community Holiday Webinar hosted by McFinn Lovere. McFinn comes to EverythingALS as a former ALS patient, Hospice administrator and ALS advocate.
  • Dec 02, 2020, 4:00 PM
    Zoom Call
    Guest Speaker Dr. Robert Bowser, Ph.D. will discuss Biomarkers in ALS to Aid in Earlier Diagnosis, Select Patients for Clinical Trials, and Monitor Impact of Therapies.
  • Nov 18, 2020, 4:00 PM
    Zoom Call
    Speakers will share tips for preparing food and connecting with families especially, during holidays.
  • Nov 09, 2020, 4:00 PM
    Zoom Call
    Our Guest Speakers, Dr. Merit Cudkowicz and Dr. Sabrina Paganoni, the principle investigators at the HEALEY Platform Trial will be discussing the results of Amylyx's ALS Drug, shows promising results in the Phase II/III Clinical Trials. They will be joined founders of Amylyx.
  • Our Guest Speaker, Dr. Terry Wahls, MD., is the author of Wahls Protocol. She is also a patient with secondary progressive multiple sclerosis. Dr. Wahls restored her health using a diet and lifestyle program she designed specifically for her brain.
  • Our Guest Speaker, Dr. Namita Goyal, MD., is one of the Principal Investigators in the NurOwn Phase 3 trial.  Before the trial is unblinded and the top line results are released later this fall, Dr. Goyal will help us understand NurOwn's clinical development & the role of neuroinflammation in ALS. 
  • Our Guest Speaker, Dr. Shelena Lalji, MD., F.A.C.O.G. is founder of the Lalji ALS Foundation and dedicated to providing  functional medicine approach to people with ALS.
  • Our topic for discussion will be Suppressing Neuroinflammation: Cell-Based Therapy in ALS. An internationally renowned researcher and neurologist, Dr. Stan Appel is dedicated to the treatment of patients with ALS and is one of the nation's foremost experts on the disease.
  • Sep 09, 2020, 5:00 PM PDT
    Zoom Call
    Our topic for discussion will be Stem Cells and Regenerative Medicine for ALS. Dr. Clive Svendsen, Ph.D. will be discussing stem cell research and the hope it brings for ALS patients.
  • Aug 26, 2020, 5:00 PM PDT
    RSVP to receive Zoom Password
    Our Guest Speakers will be discussing and demonstrating the day to day functional living with ALS; newly diagnosed, slow progressing, or fast progressing... you and your caregiver can ask any questions on speech, breathing, physical transfers etc. Get all of your questions answered.

NEW:  Register for Upcoming April 21st Event

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